When she was in fourth grade, Penny was supposed to do a project on a “big question.” She decided to learn about Down syndrome. Later, after she made her presentation,…
I just got off the phone with Delta Airlines. I explained that Penny—our 20-year-old daughter with Down syndrome—will be flying on her own for the first time this summer. We…
I mentioned last week that I have been thinking about a response to the controversy over YouTuber Jesse Ridgway’s announcement that his wife chose to terminate her pregnancy due to a…
Books, essays, podcast episodes, and more that I think are worth your time, plus recent cultural news that I’m paying attention to in the month of June… {Get my favorites…
Recently, Jesse Ridgway, a YouTube influencer, announced in a lengthy social media post that his wife had terminated her pregnancy at 20 weeks due to a diagnosis of trisomy 21,…
Penny calls in her own prescription refills now. It’s a small detail of our lives together, but it also feels like a symbol of something bigger. Eight years ago, her…
We experienced a wellspring of response when our daughter Penny was born and diagnosed with Down syndrome. People showed up in prayer, meals, messages, and care. And like so many…
On Saturday night, Peter and I went with Penny to the Down Syndrome Association of Connecticut’s World Down Syndrome Gala. We were jet-lagged, and I didn’t want to get dressed…
“I would start tomorrow if I could,” Penny said, after our visit to Clemson University. (You can watch a short highlight clip of why she loved Clemson here!) The ClemsonLIFE program…
Last week, I was packing up for the fourth of four speaking trips in a month when my mom called to say she wouldn’t be able to come stay with Penny that…
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