What Can You Leave Behind? Making Space for What Matters This School Year
Penny came downstairs the other day. We were packing up to go home. She said, “Mom, I’m doing fine with time, but I need some help with space.” What she…
Why We Shouldn’t Wait to Celebrate Joy: Disability and Family Life
One of my favorite moments at Hope Heals Camp happens at the banquet Thursday evening. After days of being together, we all gather for a meal where we start with…
Love, Guilt, and Care: A Sibling’s Disability Story with Brian Trapp
REIMAGINING THE GOOD LIFE PODCAST When a child grows up with a sibling with a disability, what defines their childhood? Author Brian Trapp reflects on life with his twin brother…
Celebrating Milestones: Anniversary, College Dreams, and a Graduation Blessing
This past week, Peter and I celebrated our 27th anniversary with two nights away in Mystic, CT. We are BIG fans of short vacations close to home, and Mystic did…
Photo credit: Hannah Cohen
Who Gets to Tell the Story? Disability, Hollywood, and Family with Craig Thomas
REIMAGINING THE GOOD LIFE PODCAST S10 E6—Is disability a tragedy to overcome, a burden to bear, an inspirational lesson for everyone else? Or is there a different story to tell,…
Why the Language We Use About Disability Matters
When our daughter was diagnosed with Down syndrome, I realized that I had the words “Down syndrome baby” in my head. I remember thinking, “I don't like that language. It…
What I Want for My Son as He Graduates: Letting Go, Growing Roots, and Looking Ahead
The past few weeks have been a whirlwind of activity in the Becker household. We’ve attended parties and prize nights and championship meets. We’ve offered words of encouragement in the…
From Fear to Future: How Families Plan for a Good Life with Sheli Reynolds, PhD
TAKE THE NEXT STEP PODCAST E24—"I don't know what life can look like for my child." If you've ever felt that, this episode is for you. Sheli Reynolds, PhD, is…
Image courtesy of Canva Pro
The “Glass Child” Myth: What Siblings of Kids with Disabilities Really Need
When our daughter who has Down syndrome was younger, our weeks were often filled with driving to doctor’s appointments, therapy visits, and specialist consultations. Some were an hour away. I…
Do Siblings of Children with Disabilities Struggle More? Rethinking the “Glass Child” Narrative
We went out to dinner as a family on Sunday. There was nothing exceptional about it. William told us about his European History class. We marvelled at Marilee’s auditory memory—she…
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