I Don’t Want to Take Away Down Syndrome
Okay, so tell me what comes to mind when you read the words, “Children with Down syndrome may no longer be born.” Here’s what those words bring up for me:…
Special: A Middle-Grade Book Featuring a Girl With Down Syndrome as a Fully Realized Character
I’ve been on the search for a middle-grade book that portrays a young girl with Down syndrome as a fully realized character for many years. I wrote about this struggle…
Is Parenting a Child With a Disability Harder?
I recently had a chance to talk with the new mother of a baby girl with Down syndrome. This mom’s emotions were raw and beautiful, that same combination of wonder…
A Good and Perfect Gift Turns 15: How Our Down Syndrome Story Still Offers Hope
Penny in 2011 with a copy of A Good and Perfect Gift Penny and I walked into a local clothing store over the weekend, and a woman stopped us and…
Photo credit: Becca Cruz
Party at Hope Heals Camp
One of the most fun—and utterly nerve-wracking—parts of Hope Heals Camp this year was writing and performing a song with Penny for the Talent Show. She’s been up on that…
How Delta Helped Make Penny’s First Solo Flight Possible
Penny flew solo for the first time on Saturday. Everything worked out easily and well. I was definitely teary as I watched her board the plane. She was definitely not!…
Childhood photo of Brian Trapp with his twin brother Danny
“That Was Not a House of Sadness”: How Disability Shapes Families Through Love and Relationship
I still remember the early days after Penny’s Down syndrome diagnosis, when I wondered what kind of life we were entering. Would our home become a place defined by fear…
Delta Surprises Penny Before Her First Solo Flight
Independence doesn’t mean doing everything alone. It means having the support you need to take the next step. Penny, our daughter with Down syndrome, prepared for her first solo flight…
More Than a Summer Job: Employment for People with Down Syndrome
I never expected to walk into an ice cream shop and see Penny, our daughter who has Down syndrome, sitting behind the register, putting in orders. But there she was—on…
Image by Ant Armada from Pexels
Advice for Penny’s First Solo Flight: A Network of Care in the Skies
Our daughter Penny is 20 years old and has Down syndrome. I cannot believe the outpouring of support, encouragement, and advice we received from far and wide—including multiple Delta executives…
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