My Stressful, Fun Day at NBC
Before I headed into Rockefeller Center with my friend Niro to talk with NBC News about disability and friendship, we had to prepare. The brainstorming was the easy part. I…
NBC News Now | Teaching Kids About Disability and Friendship
I loved being able to talk yesterday about friendship and disability with my friend Niro Feliciano on NBC News Now. One thing I talked about was neutralizing the language around…
Why Our Down Syndrome Clinic Appointment Is Worth It
Once a year, Penny and I travel to see a specialist and his team at the Down syndrome clinic at Massachusetts General Hospital. Every year, I wonder whether it will…
Christianity Today: God Teaches Me Through My Daughter with Down Syndrome
Adults with intellectual disabilities can have robust spiritual lives. Are we learning from them? Every Sunday afternoon, my daughter and I join a Zoom call with her friend and her…
Using Our Spiritual Imaginations to Envision a Good and Possible Future
I get overwhelmed easily when I think about the future, especially as Penny is about to turn 18. We need to make decisions with her about guardianship and transition planning…
Giving Tuesday
It’s Giving Tuesday tomorrow, so I thought I’d mention two organizations that we love supporting with financial gifts: Special Hope Network. This beautiful organization welcomes families affected by intellectual disability…
How to Find Joy Even When Life Is Hard
A couple weeks ago I was talking to Jamie of Mattea's Joy, and she asked me, “What does it mean to you to find joy in the journey?” How do…
What if I Feel Guilty as a Parent Because My Child Has a Disability?
What if I feel guilty as a parent because of my child’s disability? I was asked this question a few weeks ago when I was teaching for Joni and Friends.…
Friendship Forms Durable Hope
What do I do? People in my family received a terminal diagnosis for their child. What do I do? A woman recently emailed me this question. When I wrote her…
Stepping Off the Ladder of Comparison
I’ve been writing about Penny for a long time now. Along the way, I’ve often written of her accomplishments. The cuteness of hearing her pronounce “medium-hard words” when she asked…
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