Our daughter has Down syndrome. Can she live a full life?
Here's what I know... Penny has different capacities when it comes to learning, but she has no limits on her capacity to love, or to live a full life. Our…
Here's what I know... Penny has different capacities when it comes to learning, but she has no limits on her capacity to love, or to live a full life. Our…
We just returned from two weeks in Italy as a family. It held all the things we had hoped for. We peeked into churches with some of my favorite Caravaggio…
Here’s what I wish parents of typically developing kids knew about disability and relationships: Disability isn’t a completely different experience. It’s often a magnified version of the human experience we all…
I’ve been thinking a lot about belonging—what it feels like, where we find it, and how we create spaces that nurture it, spaces that say, "You are a human. You…
Apple YouTube Spotify More!  When Heather Avis says she’s one of “the lucky few,” she means it. In this episode, we talk about growing up with our children with Down…
Penny decided to participate in our new church’s Sparkle Show with a friend by singing along to Taylor Swift’s Fearless. It’s no small thing that she wanted to be there,…
Grateful to write today for Cognoscenti/WBUR, Boston’s NPR station (read the full essay here): President Trump's domestic policy agenda, backed by Republicans, jeopardizes protections, research and support for people with disabilities,…
I watched the viral video of Grace ​​Clements embracing her dad, the President of Clemson University. They tumble onto the stage together and get up for a more subdued, though…
I feel like I should be too old to have camp friends, but I guess that’s one more gift of getting involved in Hope Heals. Our friend and Hope Heals…
Apple YouTube Spotify More! Â Is disability a tragedy? Is it a gift? What place is there for grief and for joy in this story of disability so many of us…