The IEP Meeting Every Child With a Disability Deserves
Peter and I both cried at Penny’s annual meeting to discuss her IEP (Individualized Education Plan) goals. We cried because we were so overwhelmed with pride in her and gratitude…
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Abortion and People With Disabilities
Last week’s leak of a draft of a Supreme Court opinion that would overturn Roe v. Wade has people talking (yelling?) about abortion all over again. I wrote last week…
Hope Heals: Partnership of Hope and Healing
Last week, I had the honor of spending 24 hours with the board and staff and co-founders of Hope Heals. The time reminded me of many truths, including that the…
Image from TIME essay
TIME: How Disability Changed What Easter Means to My Family
I wrote an essay for TIME that came out today: How Disability Changed What Easter Means to My Family. As I write in this essay, when our daughter Penny was…
Down Syndrome Community…16 Years After Penny Was Born
When Penny was three weeks old, we got a call from a woman in town who had a teenager with Down syndrome. She was the head of the local Down…
Interview With Penny for World Down Syndrome Day
Penny, March 21 is World Down Syndrome Day. It’s a day to celebrate the lives of people like you, who were born with Down syndrome. Can you start by telling…
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Flourishing with Down Syndrome
When I was still pregnant with Penny, I had a sense that God had given me a passage from the Bible for her. It came from Psalm 1: “Blessed is…
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Delta Air Lines and Disability
Peter recently flew home and noticed that Delta Air Line’s opening safety video included an image of a man with Down syndrome sitting in the plane. It was a little…
A Few Things I Learned From Writing About Prenatal Testing
24 hours after my essay for the New York Times came out online, I learned it was also in the print edition! So that was exciting. But I also learned…
Screenshot of image used in the New York Times article
New York Times: I’m Thankful Every Day for the Decision I Made After My Prenatal Tests
Gulp. I got to write an opinion piece for the New York Times about prenatal tests and Down syndrome. There are all sorts of problems with the prenatal testing industry…
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