Praxis Press | Disability Is More Ordinary Than We Think
I often write here about life with our daughter Penny, who has Down syndrome. I tell you about her boyfriend, her experiences at work and school, her hopes and dreams…
What My Daughter Wants You to Know About Down Syndrome
We are approaching the end of Down syndrome awareness month. It always sneaks up on me. It’s both an arbitrary designation and also something that works to focus attention on…
Cognoscenti | I worried my daughter would never be independent. Then I realized she didn’t need to be
Here’s an excerpt from my latest essay at WBUR’s Cognoscenti: The list of things I never thought our daughter Penny would do is both long and simple. I never thought…
Books About Down Syndrome for Readers of All Ages
Want to learn more about what it’s like to live with Down syndrome? I have book recommendations for you (in addition, of course, to my own A Good and Perfect…
College Transition Programs for Young Adults with Disabilities Should Be the Model, Not the Exception
I want to start today by saying thank you for your concern and support when I mentioned last week that Penny might have one year fewer than we expected in…
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How to Face an Uncertain Future with Hope When Parenting a Child with a Disability
I received an email yesterday that left a pit in my stomach. I won’t go into all the details here yet, because I’m still hoping it was an administrative error.…
I Don’t Want to Take Away Down Syndrome
Okay, so tell me what comes to mind when you read the words, “Children with Down syndrome may no longer be born.” Here’s what those words bring up for me:…
Special: A Middle-Grade Book Featuring a Girl With Down Syndrome as a Fully Realized Character
I’ve been on the search for a middle-grade book that portrays a young girl with Down syndrome as a fully realized character for many years. I wrote about this struggle…
Is Parenting a Child With a Disability Harder?
I recently had a chance to talk with the new mother of a baby girl with Down syndrome. This mom’s emotions were raw and beautiful, that same combination of wonder…
What We Need to Know About Disability and Happiness with Misty Coy Snyder
TAKE THE NEXT STEP PODCAST E28 — Do you feel overwhelmed, isolated, or afraid of the future? Misty Coy Snyder knows those feelings well. After receiving a prenatal diagnosis of…
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