Baking at Her Own Pace
Penny wants to work on cooking and baking skills this year. Usually, we are rushing around, so it is hard to let her work at her own pace. But over…
Patiently, Beautifully Wrapping Presents
Gift wrapping has never been an easy task for Penny. Typically, she’s been relegated to the background of the wrapping extravaganza in our household—handing over supplies to her siblings or…
Dancing Again | Nutcracker 2024
(Keep scrolling for video!) | Our daughter Penny danced for twelve years at Fineline Theatre Arts, which included many years of performing scenes from the Nutcracker. We moved this year,…
Step by Step by Step | Increasing Independence
Step by step by step. For our daughter Penny, who has Down syndrome, the path toward adulthood and increasing independence involves many more deliberate and supported steps than it will…
One Way Churches Can Welcome People With Disabilities
Want to make your church more welcoming? Invite individuals with disabilities to lead in reading or prayer. MORE WITH AMY JULIA: FREE RESOURCE: 10 Way to Move Toward a Good…
“My Vote Makes a Huge Difference”
Does this election matter for people with disabilities and their families? Does this election matter to people with disabilities and their families? Our daughter Penny, who has Down syndrome, cast…
The Best Questions to Ask Parents
Here in Connecticut, we are settling into the rhythms of fall, with soccer games and afterschool activities and the waning temperatures of summer and the advent of golden leaves amidst…
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Welcoming Kids With Disabilities to Trick-or-Treat on Halloween
I’m thinking about Halloween for kids with disabilities. Part of what makes Halloween exciting is the idea of having fun and being together with other people. Parents, if you have…
Is Independence the Goal?
Every so often I get asked, “Do you think Penny will live independently?” I’ve started answering that question about my daughter who has Down syndrome by saying, “I never want…
Developmental Milestones for Children With Down Syndrome
I used to love developmental charts and graphs and measurements when it came to parenting. Then I hated them. And now I’m realizing their value all over again. So I…
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