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Talking About Disability
I remember this time, back when Penny was really little, when we were at a birthday party together and another mom was there with her child who also had a…
Down Syndrome Awareness Month: A Few Things I Love
In honor of Down syndrome awareness month, I wanted to name a few things that I appreciate about our daughter Penny. One, that Penny moves through the world with less…
A Glimpse of Belonging at the Beginning of Down Syndrome Awareness Month
I dream of a world where everyone belongs. Last weekend, Penny was a bridesmaid in her old-babysitter-best-friend-for-life’s wedding, and I got a little glimpse of the joy of belonging. (Go…
What’s Wrong With Having Down Syndrome?
What’s wrong with having Down syndrome? It was a question I asked many years ago, when our daughter Penny was first diagnosed with an extra copy of the 21st chromosome.…
Texas’s Abortion Law and Down Syndrome
"Why would it be a bad thing for five times more people with Down syndrome to be in the world?" asked my 13-year-old son William, whose older sister Penny has…
Happy Book Birthday, A Good and Perfect Gift
One of the things you’re supposed to do when you write a book is master your elevator pitch. How can you convey the essence of this story in the time…
I Know to Expect Penny To Be Human
I look back on these words I wrote about Penny so many years ago in A Good and Perfect Gift, and I think, Yes. That’s it. I was no longer…
Is Disability (or Down Syndrome) Abnormal?
Is disability abnormal? After Penny was born, we were told she had a genetic abnormality because she had an extra copy of her 21st chromosome. The doctors implied that “abnormal”…
In the “Woods” of Disability
"It wasn’t as if a doctor would ever say about her extra chromosome, 'It was touch-and-go for a while there, but now we’re out of the woods.' No, the woods—as…
Giveaway! Books About Down Syndrome
G I V E A W A Y !!!!!!!!! I've teamed up with some awesome authors, and you can win 7 books all about Down syndrome🙌🏽📚 🎉This giveaway is…
