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Down Syndrome

Read more about the article The Dignity of Risk

The Dignity of Risk

  • Post author:Amy Julia Becker
  • Post published:April 3, 2023
  • Post category:Disability/Down Syndrome/Parenting
  • Post comments:0 Comments

She might cut herself. She might burn herself.  She might feel lonely, sad, scared, abandoned. I have read all about the dangers of helicopter parenting, and about the importance of…

Continue ReadingThe Dignity of Risk
Read more about the article Deficit-Based Language

Deficit-Based Language

  • Post author:Amy Julia Becker
  • Post published:March 30, 2023
  • Post category:Disability/Down Syndrome
  • Post comments:0 Comments

The only way to receive special education services for kids is by focusing on their deficits.  I received a DM from one of you the other day about this reality:…

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Read more about the article What Will Perfect Humanity Look Like?
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What Will Perfect Humanity Look Like?

  • Post author:Amy Julia Becker
  • Post published:March 28, 2023
  • Post category:Disability/Down Syndrome/Faith
  • Post comments:0 Comments

I used to think I knew what perfect humanity looked like. I thought it had to do with virtues like kindness and honesty. I also thought it had to do…

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Read more about the article New Glasses: It Matters What I Think

New Glasses: It Matters What I Think

  • Post author:Amy Julia Becker
  • Post published:March 27, 2023
  • Post category:Disability/Down Syndrome/Family
  • Post comments:0 Comments

Penny is getting new glasses, after 15 years of more or less the same ones. We’ve changed the prescription but not the frames, per her request. But she has recently…

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Read more about the article Siblings on World Down Syndrome Day

Siblings on World Down Syndrome Day

  • Post author:Amy Julia Becker
  • Post published:March 23, 2023
  • Post category:Disability/Down Syndrome/Family
  • Post comments:0 Comments

Last weekend I mentioned to our kids that March 21 was World Down Syndrome Day. I reminded them that a few years ago, Marilee thought we should celebrate this day…

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Read more about the article S6 E15 | World Down Syndrome Day and Unexpected Gifts with Jillian Benfield

S6 E15 | World Down Syndrome Day and Unexpected Gifts with Jillian Benfield

  • Post author:Amy Julia Becker
  • Post published:March 21, 2023
  • Post category:Disability/Down Syndrome/Parenting/Podcast
  • Post comments:0 Comments

 On World Down Syndrome Day, Jillian Benfield, author of The Gift of the Unexpected, talks with me about whether it is hard to be the parent of a child with…

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Read more about the article World Down Syndrome Day 2023

World Down Syndrome Day 2023

  • Post author:Amy Julia Becker
  • Post published:March 20, 2023
  • Post category:Disability/Down Syndrome
  • Post comments:0 Comments

I love World Down Syndrome Day.  It’s a day to simply pause and celebrate the goodness of a world with people with Down syndrome in it.  It’s a day to…

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Read more about the article Novels (for Adults) with Characters with Intellectual Disabilities
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Novels (for Adults) with Characters with Intellectual Disabilities

  • Post author:Amy Julia Becker
  • Post published:March 16, 2023
  • Post category:Disability/Down Syndrome
  • Post comments:0 Comments

What novels have you read, recently or in a long-ago English class, that involve characters with Down syndrome or other intellectual disabilities? I’ve been thinking for a long time about…

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Read more about the article Nonverbal Individuals in the Church

Nonverbal Individuals in the Church

  • Post author:Amy Julia Becker
  • Post published:March 10, 2023
  • Post category:Disability/Down Syndrome/Faith
  • Post comments:0 Comments

When Penny was first born, an older Christian woman with a child with Down syndrome came to visit. She told me how her church hadn’t wanted to baptize her daughter…

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Read more about the article Penny’s PATH

Penny’s PATH

  • Post author:Amy Julia Becker
  • Post published:March 6, 2023
  • Post category:Disability/Down Syndrome
  • Post comments:0 Comments

Each year, a team of friends, family, educators, and community members gathers to support and encourage Penny as we plan for her future. This annual meeting is called a PATH.…

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Missing out on beautiful part 2

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Missing Out on Beautiful, Part Two

{8 essays about a child with Down syndrome growing up}

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