When she was in fourth grade, Penny was supposed to do a project on a “big question.” She decided to learn about Down syndrome. Later, after she made her presentation,…
REIMAGINING THE GOOD LIFE PODCAST S10 E6—Is disability a tragedy to overcome, a burden to bear, an inspirational lesson for everyone else? Or is there a different story to tell,…
I just got off the phone with Delta Airlines. I explained that Penny—our 20-year-old daughter with Down syndrome—will be flying on her own for the first time this summer. We…
I mentioned last week that I have been thinking about a response to the controversy over YouTuber Jesse Ridgway’s announcement that his wife chose to terminate her pregnancy due to a…
Recently, Jesse Ridgway, a YouTube influencer, announced in a lengthy social media post that his wife had terminated her pregnancy at 20 weeks due to a diagnosis of trisomy 21,…
Most of us find reasons not to, but it is almost always worth it to just show up. My most recent opportunity to be reminded of this truth came on Saturday,…
When our daughter was diagnosed with Down syndrome, I realized that I had the words “Down syndrome baby” in my head. I remember thinking, “I don't like that language. It…
TAKE THE NEXT STEP PODCAST E25—What do you do when the child you imagined isn’t the child you have? Pastor Mike Erre experienced the slow dismantling of achievement-based parenting when…
Penny calls in her own prescription refills now. It’s a small detail of our lives together, but it also feels like a symbol of something bigger. Eight years ago, her…
We experienced a wellspring of response when our daughter Penny was born and diagnosed with Down syndrome. People showed up in prayer, meals, messages, and care. And like so many…
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