2012
If We Can Fund War, We Can Fund Special Education
We received an issue of Connecticut Magazine with a cover story about the cost of special education in our state: “Schools face cost, staff constraints.” As kids across the country…
A Good and Perfect Gift Turns 15: How Our Down Syndrome Story Still Offers Hope
Penny in 2011 with a copy of A Good and Perfect Gift Penny and I walked into a local clothing store over the weekend, and a woman stopped us and…
What to Do When Parenting Feels Overwhelming: Take One Next Step and Ask for Help
I’ve taken to calling it my whiteboard of shame. When Penny was a toddler, and we had four therapists coming to the house on a weekly basis, I kept a…
The Necessary Untethering: Learning to Let Go as Our Children Grow Up
In the past two weeks, William turned 18, applied for his first credit card, and registered for a language immersion program in Spain that starts in January. (He’s doing a…
Back to School With a Child With a Disability: 5 Ways to Prepare for a Year of Belonging
I remember, when Penny was younger, how the new school year could bring excitement, uncertainty, and a whole lot of questions. If you’re parenting a child with a disability, you…
Photo credit: Becca Cruz
Party at Hope Heals Camp
One of the most fun—and utterly nerve-wracking—parts of Hope Heals Camp this year was writing and performing a song with Penny for the Talent Show. She’s been up on that…
When You Can’t Pray: How Friendship and Hope Carry Us Through Suffering
I found that I couldn’t pray after the doctor told us that our daughter had Down syndrome. I didn’t have the words, the answers, or even the faith to know…
The Discipline of Delight: How Parents Can Choose Connection Over Productivity
One night last week, we finished dinner, and I was ready to get back to work. I had already missed my deadline to submit the slides for my Hope Heals…
How Delta Helped Make Penny’s First Solo Flight Possible
Penny flew solo for the first time on Saturday. Everything worked out easily and well. I was definitely teary as I watched her board the plane. She was definitely not!…
Delta Surprises Penny Before Her First Solo Flight
Independence doesn’t mean doing everything alone. It means having the support you need to take the next step. Penny, our daughter with Down syndrome, prepared for her first solo flight…
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