I Don’t Want to Take Away Down Syndrome
Okay, so tell me what comes to mind when you read the words, “Children with Down syndrome may no longer be born.” Here’s what those words bring up for me:…
Special: A Middle-Grade Book Featuring a Girl With Down Syndrome as a Fully Realized Character
I’ve been on the search for a middle-grade book that portrays a young girl with Down syndrome as a fully realized character for many years. I wrote about this struggle…
Is Parenting a Child With a Disability Harder?
I recently had a chance to talk with the new mother of a baby girl with Down syndrome. This mom’s emotions were raw and beautiful, that same combination of wonder…
What We Need to Know About Disability and Happiness with Misty Coy Snyder
TAKE THE NEXT STEP PODCAST E28 — Do you feel overwhelmed, isolated, or afraid of the future? Misty Coy Snyder knows those feelings well. After receiving a prenatal diagnosis of…
2009
How to Help Kids Build Confidence and Capability: 3 Parenting Lessons
Somewhere along the way, my husband Peter and our daughter Penny, who has Down syndrome, developed an elaborate goodnight ritual involving a complicated handshake followed by cheering and naming sports…
2012
If We Can Fund War, We Can Fund Special Education
We received an issue of Connecticut Magazine with a cover story about the cost of special education in our state: “Schools face cost, staff constraints.” As kids across the country…
A Good and Perfect Gift Turns 15: How Our Down Syndrome Story Still Offers Hope
Penny in 2011 with a copy of A Good and Perfect Gift Penny and I walked into a local clothing store over the weekend, and a woman stopped us and…
What to Do When Parenting Feels Overwhelming: Take One Next Step and Ask for Help
I’ve taken to calling it my whiteboard of shame. When Penny was a toddler, and we had four therapists coming to the house on a weekly basis, I kept a…
The Necessary Untethering: Learning to Let Go as Our Children Grow Up
In the past two weeks, William turned 18, applied for his first credit card, and registered for a language immersion program in Spain that starts in January. (He’s doing a…
Back to School With a Child With a Disability: 5 Ways to Prepare for a Year of Belonging
I remember, when Penny was younger, how the new school year could bring excitement, uncertainty, and a whole lot of questions. If you’re parenting a child with a disability, you…
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