Every year, Penny and I visit the Down Syndrome Clinic at Mass General Hospital. (Here’s a behind-the-scenes look(!) at one of our recent visits to the Clinic.) Penny is an adult now,…
I didn’t expect turning the corner from 19 to 20 to feel like such a big deal. Our daughter Penny came into this world two decades ago, on December 30th,…
President Trump’s use of the r-word to describe Tim Walz sparked a huge increase in the word on social media, and the majority of that increase came from people using the word to…
It is hard to convey the joy I felt while standing among six young adults with disabilities on a Saturday morning. In this case, I got to hang out with…
Anyone who has read this newsletter or followed me on social media knows that I have been beating a drum of taking one small step1 at a time toward a good future.2 There are days when…
Having a child with Down syndrome has been an irrational, unprovable good. In a world of increasing mechanization, measurement and merit, we need people like our daughter among us to…
“I’m so delighted in the fact that my kids have Down syndrome and that I get to know them and love them. It feels like just the privilege and honor…
TAKE THE NEXT STEP PODCAST E6 — What if one powerful way to advocate for your child is simply to delight in who they are? Author and advocate Heather Avis…
It’s the middle of October, Down Syndrome Awareness Month, and I have done nothing to acknowledge this fact. We didn’t walk in a Buddy Walk. We haven’t posted stories about…
I would like to wave a magic wand and make the pain and discomfort of this life go away. And yes, I mean that in some big and existential sense…
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