Celebrating World Down Syndrome Day
As I type, our daughter Penny is downstairs on her phone. She might be commenting on an Instagram post or texting with a friend or sending a video message on…
Hello and Welcome!
Hi friends and welcome. Some of you are new around here, so I wanted to pause and introduce myself. So first of all, I have a double name. Amy Julia.…
The Feast on Our Doorstep
I noticed two cardboard boxes on our front door stoop last week. They didn’t have a name or address on them. Just brown cardboard boxes. When we opened them, we…
Hope: Spring Is Coming
Here in western Connecticut, we walk outside and still encounter persistent, crackly, frozen-into-ice snow on the ground. A park ranger informed me on Sunday that the ice on the lake…
Missing Out on Beautiful: Growing Up With a Child With Down Syndrome {Paperback}
December 30, 2005. That’s the day our daughter Penny was born. She was diagnosed with Down syndrome a few hours later. World Down Syndrome Day is coming up on March…
What Marilee Taught Me About Prayer
“You can tell this story as long as you make Penny and William look bad.” Those were Marilee’s words of permission to explain what happened on Sunday afternoon and why…
Every Kid Deserves a Community of Support
Earlier this month, I shared about the PATH process we participated in with Penny, in which we dreamed about her future. It’s been amazing to see the difference that meeting…
How Community Promotes Flourishing
Where do you want to be in five years? Who do you want to be in five years? What do you want to be true of your everyday life in…
Happy Birthday, Marilee!
Happy birthday, Marilee! Marilee turned ten last week, and even in the midst of a Covid winter, we were so delighted to celebrate her birthday! We invited the five other…
When Your Child Becomes a Teenager
I spent the weekend in bed with a stomach bug. Peter took Marilee and William skiing on Sunday, so it was just our teenager, Penny, and me together all day.…
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