Dreaming and Planning With Our Teenager With Down Syndrome
We had a planning meeting last February for our teenage daughter, Penny, who has Down syndrome. Penny invited friends, family, and teachers to join her for this conversation. Dreaming and…
My Daughter With Down Syndrome Helped Me Understand Racism
How did disability help me understand racism? I am white, married, educated, and affluent. Our daughter Penny was born into many of these same categories, and yet she was also…
Three Harms of Privilege
The harm of privilege is exclusion, injustice, and isolation. When I say the word privilege, I’m talking about a set of unearned social advantages given to one individual or group…
In Her Own Words: Penny on Being a Bridesmaid
Penny and I got to be bridesmaids together last weekend in my sister’s wedding. I’m going to let Penny tell you about it in her own words, but first I…
Anxiety and the Peace of God
I spent a few hours awake in the middle of the night. It was the first time in a long time that anxiety pushed aside peace and dripped into my…
Welcome! Let Me Introduce Myself
Hello friends! I’ve been writing blog posts, teaching, speaking, and writing books for years, but I wanted to pause for a minute and introduce myself to any new readers and…
S3 E2 | Living into the Really Real with Micha Boyett
How can we talk about race and disability without conflating the two? How can white, able-bodied, neurotypical people enter into this conversation? What is the difference between “white fragility” and…
Penny Heads to High School
This week we celebrated the end of Penny’s years in middle school with a car parade through campus, a dinner out—for the first time in four months—as a family, and…
The Ordinary Goodness of a Life with Down Syndrome, Even Now
Our daughter Penny is 14. She loves Taylor Swift and Fuller House and the Yankees. She betrays many signs of becoming a typical teenager: she groans when I wake her…
Hope and the Spiritual Imagination
“I suspect every pregnant woman imagines a hypothetical life for her child. And every pregnant woman knows that child’s life won’t work out exactly as she imagined it. Life will…
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