Parents and Caregivers of Kids With Disabilities, I Need Your Help!
I’ve had a few different book ideas percolating for a while now, and I would love your help as I work to bring the next one into the world. For…
COMMENT MAGAZINE | The Blurring Is Part of the Beauty
Every summer our family of five travels to Nauvoo, Alabama, for one week. It’s an unusual decision—we leave the relatively cool nights and sunshiny days of July in Connecticut for…
Here’s the question: What am I doing?
"Just do it." "You deserve a break today." "Think different." I’ve been working with a consultant for the past few months in my own attempt to come up with a…
Retreating and Reimagining
A few times a year, I spend a few nights away from my family, by myself. This time, while I’m away for the week, I’m working on a NEW project…
COGNOSCENTI | The future I imagine for my daughter
The future is uncertain. After high school, should Penny go to a community college? Will she be segregated and only socialize with peers with intellectual disabilities? I experienced a similar…
Five Years of White Picket Fences
Once, when I was speaking at a church, I was introduced as an “expert on privilege.” The person introducing me didn’t mean that I’ve done anthropological or sociological studies about…
What I Wish I’d Known When Our Child Was Diagnosed with Down Syndrome
GET THE FREE DOWNLOAD On December 30, 2005, our firstborn daughter came into the world. It was an easy delivery—a little early, but not premature, no signs of distress or…
Screenshot of cover graphic of RNS essay
RNS | Why do I still go to church?
READ THE RNS ESSAY: Why do I still go to church? For many Americans, going to church has become outdated, impractical, and in some cases even a sign of oppression.…
Festival of Faith and Writing April 2024
I can more or less measure the timeline of my writing career through the Festival of Faith and Writing. In 2008 I saw an ad for the festival in a…
TIME: Doctors Don’t Know How to Talk About Down Syndrome
Read the Essay: Doctors Don't Know How to Talk About Down Syndrome Any parent who has received a prenatal or postnatal diagnosis of Down syndrome (or any other genetic condition)…
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