Volunteering at Hope Heals Camp
Penny, Marilee, and I were excited to volunteer at Hope Heals Camp this week! A little background…Hope Heals Camp was started by Katherine and Jay Wolf (Katherine was on the…
An Introduction
There are so many wonderful new people in this space these days, so I wanted to take a moment to introduce myself to you. In brief, I am a writer,…
In Her Own Words: Penny’s Advice to a Student Beginning Ninth Grade
I asked our daughter Penny to take a few moments to reflect on her experience in ninth grade. We talked about how there are all sorts of things that happen…
Happy Father’s Day
“I’m fiercely proud of Penny and her two young siblings. They bring the full range of emotions into my life. My particular pride and joy in Penny is rooted in…
Ableism: 3 Reasons Why I Don’t Use That Term
I think it’s important to use language with intention and care. I think language reflects reality, but I also think language can shape reality. For me, the shift from calling…
AJB Recommends: Learning About Uncoupling Dignity From Achievement
“I want to sever the connection between dignity and accomplishment altogether.” So says Justin Hawkins on The Lucky Few Podcast last week. Uncoupling Dignity from Achievement Even as a mother…
Learning Science as a Teen in High School With an Intellectual Disability
Should Penny take Chemistry next year, as a tenth grader with an intellectual disability? This is the question set before us as we began to plan with Penny and her…
Englewood Review of Books Podcast: Disability and Limitations
"Limitations are so often what lead to love because if we can freely offer ourselves as both gifted and limited people, and receive other people in that same light, then…
Public Service Announcement: How to Talk to a Person With an Intellectual Disability
When Penny sat down to receive the shot for her Covid-19 vaccine, the nurse looked at her directly and asked, “Full name? Date of birth? Have you ever had an…
Surprised by Our Teenager With Down Syndrome
In the past few weeks, I’ve been surprised by Penny, our 15-year-old daughter who has Down syndrome. I was surprised when she recited the Gettysburg Address in preparation for doing…
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