Dreaming and Planning With Our Teenager With Down Syndrome
We had a planning meeting last February for our teenage daughter, Penny, who has Down syndrome. Penny invited friends, family, and teachers to join her for this conversation. Dreaming and…
We had a planning meeting last February for our teenage daughter, Penny, who has Down syndrome. Penny invited friends, family, and teachers to join her for this conversation. Dreaming and…
How did disability help me understand racism? I am white, married, educated, and affluent. Our daughter Penny was born into many of these same categories, and yet she was also…
The harm of privilege is exclusion, injustice, and isolation. When I say the word privilege, I’m talking about a set of unearned social advantages given to one individual or group…
Penny and I got to be bridesmaids together last weekend in my sister’s wedding. I’m going to let Penny tell you about it in her own words, but first I…
I spent a few hours awake in the middle of the night. It was the first time in a long time that anxiety pushed aside peace and dripped into my…
Hello friends! I’ve been writing blog posts, teaching, speaking, and writing books for years, but I wanted to pause for a minute and introduce myself to any new readers and…
How can we talk about race and disability without conflating the two? How can white, able-bodied, neurotypical people enter into this conversation? What is the difference between “white fragility” and…
This week we celebrated the end of Penny’s years in middle school with a car parade through campus, a dinner out—for the first time in four months—as a family, and…
Our daughter Penny is 14. She loves Taylor Swift and Fuller House and the Yankees. She betrays many signs of becoming a typical teenager: she groans when I wake her…
“I suspect every pregnant woman imagines a hypothetical life for her child. And every pregnant woman knows that child’s life won’t work out exactly as she imagined it. Life will…