Celebrating World Down Syndrome Day
As I type, our daughter Penny is downstairs on her phone. She might be commenting on an Instagram post or texting with a friend or sending a video message on…
Hello and Welcome!
Hi friends and welcome. Some of you are new around here, so I wanted to pause and introduce myself. So first of all, I have a double name. Amy Julia.…
Missing Out on Beautiful: Growing Up With a Child With Down Syndrome {Paperback}
December 30, 2005. That’s the day our daughter Penny was born. She was diagnosed with Down syndrome a few hours later. World Down Syndrome Day is coming up on March…
Every Kid Deserves a Community of Support
Earlier this month, I shared about the PATH process we participated in with Penny, in which we dreamed about her future. It’s been amazing to see the difference that meeting…
S4 E6 | The Reunited States: Love Big Enough to Heal with Erin Leaverton
Erin and David Leaverton sold their house, loaded their three, young children into an RV, and traveled the country for a year. Their family’s journey is part of the documentary…
How Community Promotes Flourishing
Where do you want to be in five years? Who do you want to be in five years? What do you want to be true of your everyday life in…
Hospitals and Hospitality: Places of Healing
I was reminded recently (by Victoria Sweet, author of God’s Hotel) that hospital and hospitality share the same root word. I tend to think of hospitals as sterile places where…
When Your Child Becomes a Teenager
I spent the weekend in bed with a stomach bug. Peter took Marilee and William skiing on Sunday, so it was just our teenager, Penny, and me together all day.…
Happy 15th Birthday, Penny!
We celebrated Penny’s 15th birthday last week. She requested a game-themed party, and she has recently become a pro at backgammon. Marilee and William felt confident that they had watched…
Pointe Shoes and Developing Perseverance
Penny got new pointe shoes last week. For a long time, I thought pointe—which requires strength in both the feet and ankles that I didn’t believe Penny would ever have—would…
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