Pointe Shoes and Developing Perseverance
Penny got new pointe shoes last week. For a long time, I thought pointe—which requires strength in both the feet and ankles that I didn’t believe Penny would ever have—would…
My High Schooler’s Independence
I was recently reminded of my high schooler's independence. Last week I left the girls home alone together while I went to the grocery store. Before I went, I suggested…
Amy Coney Barrett, Down Syndrome, and Abortion
I have a new essay about Amy Coney Barrett, Down syndrome, and abortion (really light topics with no controversy!) up at the Religion News Service site today. I’ve been thinking…
How Beauty Brings Peace, How Peace Brings Beauty
William took these photos the other day as a part of a year-long project he’s doing at school where he’s planning to learn how to identify local trees and plants…
Dreaming and Planning With Our Teenager With Down Syndrome
We had a planning meeting last February for our teenage daughter, Penny, who has Down syndrome. Penny invited friends, family, and teachers to join her for this conversation. Dreaming and…
Human Suffering Is Not the Only Point of Connection
I am so much more interested in human connection than human division. But where does that connection come from? How does it happen? I spoke with a former English teacher…
Big Feelings and Growing Up with Marilee
What do you do with a child with big feelings? Especially if you are a parent who has never had similarly big feelings? Yes, I am the parent with feelings…
My Daughter With Down Syndrome Helped Me Understand Racism
How did disability help me understand racism? I am white, married, educated, and affluent. Our daughter Penny was born into many of these same categories, and yet she was also…
Privilege and Planning
Today, all three of our children are going to school, in person, for a full day. (Last week, they had a variety of half days and phase-in days, which is…
When Grace Runs Dry
For our family, summer has been a relief. Marilee played softball and William played baseball and Penny went to summer school, in person. We spent a lot of time with…
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