Responsive Parenting
When Penny was three months old, and we were so very new to all things parenting and all things related to disability, we attended a conference for parents of children…
Able to be Wounded, Able to Love
In my recent essay for Plough Magazine, I wrote, “Penny was diagnosed with a ‘disability’ when she was born, and I still use that word to describe her condition because…
Dreaming for the Future
When Penny was younger, I resisted setting goals for her. The early years of her life were full of measurements and yardsticks and a sense of "falling short" of developmental…
Penny in Her Own Words: The PATH Process and Planning for the Future
I asked Penny if she would be willing to answer a few questions about her experience with the PATH process. These are her unedited responses: How would you explain what…
Penny’s PATH Process: Planning for Life After High School
Once a year, a group of people from Penny’s school, family, and community gather together with her to talk about her hopes and dreams for the future through a process…
Happy Sweet Sixteen, Penny!
Penny started planning for her Sweet Sixteen three years ago. It was the topic of many a family walk—who would be invited, what the menu would entail, how we would…
S5 E8 | What Disability Teaches Us About Health and Wholeness with Dr. Brian Brock
What does it mean to be healthy? Can people with disabilities be healthier than typical people? What does it mean to be healed by God? Dr. Brian Brock, author of…
Meritocracy Is the Antithesis to Love | Plough Essay
Meritocracy is the antithesis to love. I first wrote those words almost two years ago, when we were traveling cross-country and we were taking regular hikes as a family. On…
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God Didn’t Create Any Ugly Humans
A prominent pastor and theologian spoke at length earlier this week about why God might make some people unattractive. He lumped together “ugliness” with disfigurement and disability and then went…
Down Syndrome Awareness Month: Awareness Would Be Enough
I used to think that “awareness” was too small a word for what we need in order to change the perceptions and reality for people with Down syndrome like our…
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