Texas’s Abortion Law and Down Syndrome
"Why would it be a bad thing for five times more people with Down syndrome to be in the world?" asked my 13-year-old son William, whose older sister Penny has…
Happy Book Birthday, A Good and Perfect Gift
One of the things you’re supposed to do when you write a book is master your elevator pitch. How can you convey the essence of this story in the time…
I Know to Expect Penny To Be Human
I look back on these words I wrote about Penny so many years ago in A Good and Perfect Gift, and I think, Yes. That’s it. I was no longer…
Is Disability (or Down Syndrome) Abnormal?
Is disability abnormal? After Penny was born, we were told she had a genetic abnormality because she had an extra copy of her 21st chromosome. The doctors implied that “abnormal”…
In the “Woods” of Disability
"It wasn’t as if a doctor would ever say about her extra chromosome, 'It was touch-and-go for a while there, but now we’re out of the woods.' No, the woods—as…
Giveaway! Books About Down Syndrome
G I V E A W A Y !!!!!!!!! I've teamed up with some awesome authors, and you can win 7 books all about Down syndrome🙌🏽📚 🎉This giveaway is…
What Our Bodies Are Like in Heaven
What will our bodies look like in heaven? To push the point a little bit, what will the bodies of people with disabilities look like in heaven? What will our…
An Accelerated Course in Love
An accelerated course in love—“...every time I recognized the purity of my love for Penny, I was dying to an old part of myself, an old part that thought the…
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Clenched Fist or Open Palm
“It was as if I started off with my fist clenched tight around a vision of a child and, as Penny grew, I slowly opened my fingers. The bits and…
Dance Like Everybody’s Watching (and Celebrating What They See)
On the second night of Hope Heals Camp, there’s a Talent Show. And on the last night, there’s a dance party. From babies to grandparents, from adults in wheelchairs to…
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