Penny’s Take on Hope Heals
Okay, this is my final (for now) post about Hope Heals Camp last week. I started out planning to tell you all about it in one post, and here we…
Hope Heals Camp: Belovedness and Belonging
Hope Heals Camp exists as a place where families affected by disability can receive rest, resources, and relationships. As Jay and Katherine Wolf, co-founders, say, Hope Heals seeks to “disrupt…
Normie Film Streaming Now
WATCH NORMIE REGISTER for the Reimagining Family Life with Disability Workshop Our family was featured in a documentary called Normie. It’s a film that tells the story of Annemarie, a…
Stubbornness and Down Syndrome
“People with Down syndrome are stubborn.” I’ve heard it from the time Penny was born. From therapists, teachers, doctors, and other parents. It has always struck me as a negative…
The Ambiguities of Abortion
Quick Links: There’s a Better Way to Debate Abortion by Peter Wehner | THE ATLANTIC How the End of Roe Would Change Prenatal Care by Sarah Zhang | THE ATLANTIC…
The IEP Meeting Every Child With a Disability Deserves
Peter and I both cried at Penny’s annual meeting to discuss her IEP (Individualized Education Plan) goals. We cried because we were so overwhelmed with pride in her and gratitude…
Image courtesy of Getty Images Signature | Canva Pro
Abortion and People With Disabilities
Last week’s leak of a draft of a Supreme Court opinion that would overturn Roe v. Wade has people talking (yelling?) about abortion all over again. I wrote last week…
Hope Heals: Partnership of Hope and Healing
Last week, I had the honor of spending 24 hours with the board and staff and co-founders of Hope Heals. The time reminded me of many truths, including that the…
Image from TIME essay
TIME: How Disability Changed What Easter Means to My Family
I wrote an essay for TIME that came out today: How Disability Changed What Easter Means to My Family. As I write in this essay, when our daughter Penny was…
Down Syndrome Community…16 Years After Penny Was Born
When Penny was three weeks old, we got a call from a woman in town who had a teenager with Down syndrome. She was the head of the local Down…
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