When One Child Needs More Attention
I’ve been receiving some great questions from readers lately, and I wanted to share my answers to some of the questions that might apply to lots of us. Here’s the…
3 Pieces of Advice for Parents of a Child With Down Syndrome
I have some advice for you! Here are three things I would do differently as the parent of a child with Down syndrome: 1. Pay more attention to self-care skills…
Finding Places Where Everyone Belongs
Where everyone belongs. That’s the dream. That’s the hope. That’s the space and the community and the future we long for. Sometimes we catch glimpses of it. Penny and I…
To Be Made Well and Disability
When we look at the stories of Jesus with people with disabilities in the Bible, it can seem like a really simple equation. Disability=bad. Curing=good. But one of the things…
Disability and Respect: Look Her in the Eye
I’m so grateful for the technician at the eye doctor appointment who assumes that Penny can speak for herself. I’m also aware of how surprised I feel that this young…
False Message: Disability is a problem to be fixed.
Every day, we encounter images and phrases and assumptions and false messages about disability that shape our way of perceiving people with disabilities. Many of these depictions and assumptions are…
Overheard on the Trail: Best Brother
“You’re my only brother. But you’re the best brother.” We took a hike as a family over the winter break. It was mostly up a small mountain, and Penny struggled…
On Pointe, Step by Determined Step
Penny performed on pointe in the Nutcracker this past weekend (video below). And maybe that doesn’t seem like a big deal or something to write a post about, but I…
Santa Can Be Tough For Kids With Disabilities
Penny and I stood in front of Town Hall last Saturday night, listening to Marilee and her school choir singing Carol of the Bells. Then the mayor announced that Santa…
Image courtesy of Canva Pro
Please Don’t Call Anyone Low-Functioning
I’ve been trying to figure out why it bothers me to hear people described as “high functioning” and “low functioning.” The other day, a friend of mine mentioned that a…
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