Every day, we encounter images and phrases and assumptions and false messages about disability that shape our way of perceiving people with disabilities. Many of these depictions and assumptions are…
“You’re my only brother. But you’re the best brother.” We took a hike as a family over the winter break. It was mostly up a small mountain, and Penny struggled…
Penny performed on pointe in the Nutcracker this past weekend (video below). And maybe that doesn’t seem like a big deal or something to write a post about, but I…
Penny and I stood in front of Town Hall last Saturday night, listening to Marilee and her school choir singing Carol of the Bells. Then the mayor announced that Santa…
I’ve been trying to figure out why it bothers me to hear people described as “high functioning” and “low functioning.” The other day, a friend of mine mentioned that a…
Disability and blessing. I preached on that topic from Luke 14 last Sunday, and I wanted to share that with you here. As many of you know, Penny was diagnosed…
As we come to the end of Down Syndrome Awareness month, I had a chance to preach at church Sunday about the theology of disability. It sounds like a heady…
People often ask me what it is like having a sibling with Down syndrome for our two younger children, Marilee and William. Is having their 16-year-old sister, Penny, in their…
In honor of Down Syndrome Awareness Month, I asked Penny to share some thoughts about who she is, what matters to her, and what she would like other people to…
On my quest for chapter books that include characters with Down syndrome, I received dozens of recommendations for picture books. We’ve featured some of those here recently, but there are…
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