Down Syndrome Awareness Month Begins
October is Down Syndrome Awareness Month! It’s a month to celebrate the lives of people with Down syndrome. It’s a month to continue to advocate for the significance of people…
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Why Changing the R-Word Only Matters So Much
Essay Quick Link: New Proposal In Congress Would Remove ‘Mentally Retarded’ From Federal Law I grew up hearing the R-word from other people. “I’m so ___” or “You’re such a…
Main Characters With Intellectual Disabilities in Chapter Books
Are there any chapter books with a main character who has Down syndrome or other intellectual disabilities? I’m so grateful for books like RJ Palacio’s Wonder, which is a fantastic…
A Good and Perfect Gift Turns 11!
Eleven years ago, A Good and Perfect Gift was published. I still hear from readers regularly who have discovered this book and reach out to tell me the way it…
Penny Starts Her Junior Year
And all of a sudden, she’s a junior. A junior who set her alarm and woke up without nudging. Who packed her lunch and her backpack and picked out her…
A Secret Sign for “I Love a Person With Down Syndrome”
I wish there were some sort of hand signal or gesture that meant, “I love a person with Down syndrome.” Kind of like “Honk if you love Jesus,” except it…
Camp PALS | Penny in Her Own Words
Penny had a chance to go to Camp PALS with her friend Rachel after two years of waiting due to Covid. PALS is one of the places where Penny comes…
Penny’s Take on Hope Heals
Okay, this is my final (for now) post about Hope Heals Camp last week. I started out planning to tell you all about it in one post, and here we…
Hope Heals Camp: Belovedness and Belonging
Hope Heals Camp exists as a place where families affected by disability can receive rest, resources, and relationships. As Jay and Katherine Wolf, co-founders, say, Hope Heals seeks to “disrupt…
Normie Film Streaming Now
WATCH NORMIE REGISTER for the Reimagining Family Life with Disability Workshop Our family was featured in a documentary called Normie. It’s a film that tells the story of Annemarie, a…
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