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  • About
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Down Syndrome

Read more about the article What Do I Think About the Barbie With Down Syndrome?

What Do I Think About the Barbie With Down Syndrome?

  • Post published:April 29, 2023
  • Post category:Down Syndrome
  • Post comments:0 Comments
  • Post author:Amy Julia Becker

What do I think about the new Barbie with Down syndrome? I was a little skeptical at first. She isn’t wearing glasses, which most people with Down syndrome wear. Her…

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Read more about the article What an Assessment of My Daughter’s Life Tells Me About Us

What an Assessment of My Daughter’s Life Tells Me About Us

  • Post published:April 26, 2023
  • Post category:Disability/Down Syndrome
  • Post comments:0 Comments
  • Post author:Amy Julia Becker

Every few years, Penny goes through a series of tests to determine the extent of her disability and, therefore, what services she is eligible to receive. I am tasked with…

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Read more about the article Some People Are Awesome

Some People Are Awesome

  • Post published:April 24, 2023
  • Post category:Disability/Down Syndrome
  • Post comments:0 Comments
  • Post author:Amy Julia Becker

We’ve encountered our fair share of subtle discrimination over the years. The people who talk to me as if Penny isn’t present. The professionals who have predicted her future in…

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Read more about the article 3 Things I’m (Still) Learning About Down Syndrome

3 Things I’m (Still) Learning About Down Syndrome

  • Post published:April 20, 2023
  • Post category:Disability/Down Syndrome/Parenting
  • Post comments:0 Comments
  • Post author:Amy Julia Becker

Penny was on spring break last week. Our original hopes for a quick trip to Jamaica never materialized, but we did get to spend two nights with Penny’s friend Rachel…

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Read more about the article Down Syndrome’s “Exclusive Club”

Down Syndrome’s “Exclusive Club”

  • Post published:April 11, 2023
  • Post category:Disability/Down Syndrome/Parenting
  • Post comments:0 Comments
  • Post author:Amy Julia Becker

I remember a day 17 years ago when Peter and I had spent hours with Penny at the Children’s Hospital of Philadelphia. We were exhausted. But he needed to attend…

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Read more about the article The Dignity of Risk

The Dignity of Risk

  • Post published:April 3, 2023
  • Post category:Disability/Down Syndrome/Parenting
  • Post comments:0 Comments
  • Post author:Amy Julia Becker

She might cut herself. She might burn herself.  She might feel lonely, sad, scared, abandoned. I have read all about the dangers of helicopter parenting, and about the importance of…

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Read more about the article Deficit-Based Language

Deficit-Based Language

  • Post published:March 30, 2023
  • Post category:Disability/Down Syndrome
  • Post comments:0 Comments
  • Post author:Amy Julia Becker

The only way to receive special education services for kids is by focusing on their deficits.  I received a DM from one of you the other day about this reality:…

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Read more about the article What Will Perfect Humanity Look Like?
Image courtesy of Canva Pro

What Will Perfect Humanity Look Like?

  • Post published:March 28, 2023
  • Post category:Disability/Down Syndrome/Faith
  • Post comments:0 Comments
  • Post author:Amy Julia Becker

I used to think I knew what perfect humanity looked like. I thought it had to do with virtues like kindness and honesty. I also thought it had to do…

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Read more about the article New Glasses: It Matters What I Think

New Glasses: It Matters What I Think

  • Post published:March 27, 2023
  • Post category:Disability/Down Syndrome/Family
  • Post comments:0 Comments
  • Post author:Amy Julia Becker

Penny is getting new glasses, after 15 years of more or less the same ones. We’ve changed the prescription but not the frames, per her request. But she has recently…

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Read more about the article Siblings on World Down Syndrome Day

Siblings on World Down Syndrome Day

  • Post published:March 23, 2023
  • Post category:Disability/Down Syndrome/Family
  • Post comments:0 Comments
  • Post author:Amy Julia Becker

Last weekend I mentioned to our kids that March 21 was World Down Syndrome Day. I reminded them that a few years ago, Marilee thought we should celebrate this day…

Continue ReadingSiblings on World Down Syndrome Day
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Website by FRW Design and photo credits by Cloe Poisson, Chris Cappozziello, Philip Dutton

The image is a book cover with the title "From Exclusion to Belonging" by Amy Julia Becker. The cover features a group of four smiling teenagers, including a young woman with Down syndrome in the center. They are dressed in casual clothing and appear to be in an outdoor setting with a blurred background of greenery. The design includes a torn paper effect separating the title text from the image. The title text is in a clean, modern font with "FROM EXCLUSION" at the top and "TO BELONGING" at the bottom, with the author's name displayed below.

From Exclusion to Belonging

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An illustrated guide designed to help you identify and create spaces of welcome and belonging—download today!

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5 Things I Wish I’d Known
When Our Daughter Was Diagnosed with Down Syndrome

photo of Amy Julia smiling and leaning her head against Penny's head, who is a young girl with Down syndrome. She sits on Amy Julia's lap.
Advent e-book Prepare Him Room

ADVENT DEVOTIONAL

Prepare Him Room: Advent Reflections on What Happens When God Shows Up

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