Camp PALS | Penny in Her Own Words
Penny had a chance to go to Camp PALS with her friend Rachel after two years of waiting due to Covid. PALS is one of the places where Penny comes…
Interview With Penny for World Down Syndrome Day
Penny, March 21 is World Down Syndrome Day. It’s a day to celebrate the lives of people like you, who were born with Down syndrome. Can you start by telling…
Penny in Her Own Words: The PATH Process and Planning for the Future
I asked Penny if she would be willing to answer a few questions about her experience with the PATH process. These are her unedited responses: How would you explain what…
Penny in Her Own Words: Down Syndrome, School, and Friends
My name is Penny and I have an extra chromosome because I have Down syndrome. In my daily life I wake up independently, make breakfast, and go to school. My…
In Her Own Words: Penny’s Advice to a Student Beginning Ninth Grade
I asked our daughter Penny to take a few moments to reflect on her experience in ninth grade. We talked about how there are all sorts of things that happen…
In Her Own Words: Penny on Being a Bridesmaid
Penny and I got to be bridesmaids together last weekend in my sister’s wedding. I’m going to let Penny tell you about it in her own words, but first I…
S3 Bonus | Talking with Our Kids About Race, Justice, Love, and Privilege
How do we talk with kids about race, justice, and privilege? In this follow up to last week’s interview with Patricia Raybon, Amy Julia interviews her three children. Penny, William,…
In Their Own Words: Penny and William on Technology
In their own words! Penny and William have some things to say about children and families and technology. Most of our kids’ friends have some sort of personal electronic device…
In Her Own Words: Penny on Independence and Self-Advocacy
When Penny was first born and diagnosed with Down syndrome, Peter and I went through a hard season in which we felt like our expectations for parenting were overturned now…
In Their Own Words: William and Marilee on Having a Sister with Down Syndrome
I’ve written a LOT about our family over the course of the past decade, and I’m glad our kids are old enough to do a little bit of writing for…
