Our Daughter Doesn’t “Just Happen” to Have Down Syndrome
I used to describe Penny as a girl with light brown hair and big green eyes, who loved reading and dancing. And then I would write something along the lines…
3 Things I’m Grateful For
3 things I’m grateful for… Penny’s desire to attend every sporting event her siblings ever have so that she can cheer them on The fun Marilee and William are both…
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Making Hard Decisions With Love, Not Fear
Every day brings with it little hard parenting decisions. And every day I’m not sure at all that I get them right. Recently, I’ve decided to let Marilee bring her…
3 Things I’m (Still) Learning About Down Syndrome
Penny was on spring break last week. Our original hopes for a quick trip to Jamaica never materialized, but we did get to spend two nights with Penny’s friend Rachel…
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Addressing our Mental Health Crisis
I am kind of obsessed with Dr. Lisa Miller right now. I read her 2015 book, The Spiritual Child, a few months back. And then I raced through her more…
Down Syndrome’s “Exclusive Club”
I remember a day 17 years ago when Peter and I had spent hours with Penny at the Children’s Hospital of Philadelphia. We were exhausted. But he needed to attend…
Recording the Small Talk Audiobook
I had so much fun this week recording the audiobook of Small Talk! Small Talk came out nine years ago, in 2014, and for whatever reason, it never became an…
The Dignity of Risk
She might cut herself. She might burn herself. She might feel lonely, sad, scared, abandoned. I have read all about the dangers of helicopter parenting, and about the importance of…
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Imagining a World Without School Shootings
Three nine-year-old children were murdered in their classroom on Monday morning. Three nine-year-old children. Their beautiful faces captured our imagination through tragedy. Theirs are one more in a litany of…
S6 E15 | World Down Syndrome Day and Unexpected Gifts with Jillian Benfield
On World Down Syndrome Day, Jillian Benfield, author of The Gift of the Unexpected, talks with me about whether it is hard to be the parent of a child with…
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