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What Would You Say to Your Teenage Self?
People ask me all the time what I would say to my teenage self. I was a hyper-driven achiever with a severe eating disorder that resulted in multiple hospitalizations and…
Seats That Money Can’t Buy at the Taylor Swift Concert
We ended up in seats that money can’t buy at the Taylor Swift concert last Saturday night. It started in March when we received two tickets at reasonable prices through…
I Want Our Kids to Accomplish Things, Not Achieve Them
I don’t want our kids to achieve much. I want them to accomplish a lot. At least, according to the way Adam Gopnik distinguishes accomplishment from achievement, this is what…
When We Talk for 20 Minutes
Here’s what happens on a sunny afternoon when I insist on Marilee taking twenty minutes to talk with me about her day. She tries on some dresses for upcoming events.…
Our Daughter Doesn’t “Just Happen” to Have Down Syndrome
I used to describe Penny as a girl with light brown hair and big green eyes, who loved reading and dancing. And then I would write something along the lines…
3 Things I’m Grateful For
3 things I’m grateful for… Penny’s desire to attend every sporting event her siblings ever have so that she can cheer them on The fun Marilee and William are both…
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Making Hard Decisions With Love, Not Fear
Every day brings with it little hard parenting decisions. And every day I’m not sure at all that I get them right. Recently, I’ve decided to let Marilee bring her…
3 Things I’m (Still) Learning About Down Syndrome
Penny was on spring break last week. Our original hopes for a quick trip to Jamaica never materialized, but we did get to spend two nights with Penny’s friend Rachel…
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Addressing our Mental Health Crisis
I am kind of obsessed with Dr. Lisa Miller right now. I read her 2015 book, The Spiritual Child, a few months back. And then I raced through her more…
Down Syndrome’s “Exclusive Club”
I remember a day 17 years ago when Peter and I had spent hours with Penny at the Children’s Hospital of Philadelphia. We were exhausted. But he needed to attend…
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