How should I talk with my typically-developing kids about a brother or sister who has a disability? As the mother of an 18-year-old with Down syndrome with two younger siblings…
I spoke with the Massachusetts Down Syndrome Congress Grandparents support group this week by Zoom, and what struck me most was that they all just want a good future for…
For the moms who feel like they aren’t doing enough to help their kids (with disabilities) move toward independence, here are a few things I’ve learned: “Not enough” is never…
Sometimes the future comes at us like an assault. A tornado of unanswerable questions that suggest chaos is about to ensue. That’s what it felt like when Penny was diagnosed…
So I’m in a really overwhelming time right now. We are in the midst of a long and drawn-out move. I’m staying in a rental house with Penny and Marilee…
When I had a chance to talk with NBC News about parenting kids with disabilities, I was asked about playdates. Here, in a nutshell, is what I wish parents of…
It’s a big deal to turn 18. For every teenager, that birthday marks a transition to adulthood. For kids with disabilities, it carries even more weight, especially as it connects…
I didn't realize I’d gone into the hospital with a set of expectations, but I had. I very much had a set of expectations about who our child would be…
Our daughter Penny turns 18 today. She’s not at home with us, as it turns out. Rather, she is at a retreat center with a group of other teenagers for…
On Christmas we celebrate because love has shown up in our world. Not in some vague, abstract way. But love, in the flesh, in the person of Jesus. And when…
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