World Down Syndrome Day 2024
Happy World Down Syndrome Day! Our daughter Penny is 18, and we join thousands of other people around the globe who want to raise awareness about Down syndrome today. First,…
Penny’s Final Night of Cheerleading
I don’t know why I wasn’t weepy with Penny’s final night of cheerleading. Maybe I’m in total denial that her time in high school is coming to an end. Maybe…
Changing Prepositions (from “for” to “with”)
As a part of an ongoing desire to honor Penny’s capacities as an adult with Down syndrome, I’m learning to change my prepositions. I keep catching myself talking about things…
Down Syndrome Through the Ages
How did ancient cultures treat people with Down syndrome? Researchers just discovered the remains of a few babies with Down syndrome from thousands of years ago, and they determined that…
Penny’s Senior Night as a Cheerleader
If you had told me when she was born that our daughter with Down syndrome would be a Varsity cheerleader at our local high school, I don’t think I would…
2020 | Courtesy of Meghan Morse Photography
How to Talk With Siblings About Disability
How should I talk with my typically-developing kids about a brother or sister who has a disability? As the mother of an 18-year-old with Down syndrome with two younger siblings…
Applying to the Emerging Pathways Program
Penny just submitted her application for an “emerging pathways” program on a local University campus. She spent hours filling out the forms and working on short essays to describe her…
If You’re a Parent Who Has Received a Hard Diagnosis About Your Child
If you are a parent who has recently received a hard diagnosis about your child, I have three thoughts that I want to offer. One, feel your feelings. When we…
The Disability Community Needs Grandparents Like These
I spoke with the Massachusetts Down Syndrome Congress Grandparents support group this week by Zoom, and what struck me most was that they all just want a good future for…
Disability and Suffering Are Not the Same
Disability and suffering are not the same. I was so disappointed to read John McWhorter's misunderstanding of disability in the NYT. He wrote: "To say that someone “has” a disability…
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