Penny’s PATH
Each year, a team of friends, family, educators, and community members gathers to support and encourage Penny as we plan for her future. This annual meeting is called a PATH.…
Self-Advocacy and Disability
All of us as parents walk a thin line between supporting our kids appropriately and offering them too much support. Honestly, it’s even harder to know the balance when your…
You Can Be the Person Who Makes a Difference
I walked into the gym a few minutes late. Penny was perched on the sidelines along with the other cheerleaders. The boys’ basketball team had taken a slight lead. I…
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Overcoming My Skepticism About Night to Shine
I felt pretty skeptical about Night to Shine. If you aren’t familiar with this event, it’s an annual gathering for teenagers (and adults) with disabilities, hosted by churches, and sponsored…
Some Thoughts on Down Syndrome and Cheerleading
One of my shining moments as a mother was forcing Penny to try out for cheerleading last year. I told her she didn’t have to participate if she made it,…
Skiing, Disability, and Love
So here’s a sentence I didn’t think I would ever type: we went skiing as a family. I have not been skiing in over twenty years. And then there’s Penny.…
When One Child Needs More Attention
I’ve been receiving some great questions from readers lately, and I wanted to share my answers to some of the questions that might apply to lots of us. Here’s the…
3 Pieces of Advice for Parents of a Child With Down Syndrome
I have some advice for you! Here are three things I would do differently as the parent of a child with Down syndrome: 1. Pay more attention to self-care skills…
Finding Places Where Everyone Belongs
Where everyone belongs. That’s the dream. That’s the hope. That’s the space and the community and the future we long for. Sometimes we catch glimpses of it. Penny and I…
To Be Made Well and Disability
When we look at the stories of Jesus with people with disabilities in the Bible, it can seem like a really simple equation. Disability=bad. Curing=good. But one of the things…
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