FINAL Final Draft of To Be Made Well
My current stack of books: When the Body Says No Life of the Beloved God's Hotel No Cure for Being Human Becoming Friends of Time The Very Good Gospel…
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God Didn’t Create Any Ugly Humans
A prominent pastor and theologian spoke at length earlier this week about why God might make some people unattractive. He lumped together “ugliness” with disfigurement and disability and then went…
Down Syndrome Awareness Month: Awareness Would Be Enough
I used to think that “awareness” was too small a word for what we need in order to change the perceptions and reality for people with Down syndrome like our…
A Few of My Favorite Things: Week 10 | Three New Books
Ending the day without anxiety. Receiving spiritual truth and practical wisdom from another mother of a child with a disability. And entering into a story about the extravagant tenderness of…
Down Syndrome Awareness Month: The Apple Doesn’t Fall From the Tree
“The apple doesn’t fall far from the tree.” That’s what my sister wrote to me after I showed her an email from Penny. Penny, unprompted, had sent me a Google…
Penny in Her Own Words: Down Syndrome, School, and Friends
My name is Penny and I have an extra chromosome because I have Down syndrome. In my daily life I wake up independently, make breakfast, and go to school. My…
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Talking About Disability
I remember this time, back when Penny was really little, when we were at a birthday party together and another mom was there with her child who also had a…
Down Syndrome Awareness Month: A Few Things I Love
In honor of Down syndrome awareness month, I wanted to name a few things that I appreciate about our daughter Penny. One, that Penny moves through the world with less…
A Glimpse of Belonging at the Beginning of Down Syndrome Awareness Month
I dream of a world where everyone belongs. Last weekend, Penny was a bridesmaid in her old-babysitter-best-friend-for-life’s wedding, and I got a little glimpse of the joy of belonging. (Go…
What’s Wrong With Having Down Syndrome?
What’s wrong with having Down syndrome? It was a question I asked many years ago, when our daughter Penny was first diagnosed with an extra copy of the 21st chromosome.…
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