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“I Don’t Want Anyone to ‘Fix’ My Kid”
I listened to Heather Kirn Lanier and Bishop Curry in a beautiful conversation about disability and parenting and what it means to believe that we each are beloved as we…
Interview With Penny for World Down Syndrome Day
Penny, March 21 is World Down Syndrome Day. It’s a day to celebrate the lives of people like you, who were born with Down syndrome. Can you start by telling…
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Without People with Disabilities, We Are Missing Out
If your church doesn’t have any participating members with intellectual disabilities, you are missing out on knowing the fullness of who God is. I’ve been reading Brian Brock’s wonderful book,…
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Flourishing with Down Syndrome
When I was still pregnant with Penny, I had a sense that God had given me a passage from the Bible for her. It came from Psalm 1: “Blessed is…
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Delta Air Lines and Disability
Peter recently flew home and noticed that Delta Air Line’s opening safety video included an image of a man with Down syndrome sitting in the plane. It was a little…
A Few Things I Learned From Writing About Prenatal Testing
24 hours after my essay for the New York Times came out online, I learned it was also in the print edition! So that was exciting. But I also learned…
Screenshot of image used in the New York Times article
New York Times: I’m Thankful Every Day for the Decision I Made After My Prenatal Tests
Gulp. I got to write an opinion piece for the New York Times about prenatal tests and Down syndrome. There are all sorts of problems with the prenatal testing industry…
Responsive Parenting
When Penny was three months old, and we were so very new to all things parenting and all things related to disability, we attended a conference for parents of children…
Able to be Wounded, Able to Love
In my recent essay for Plough Magazine, I wrote, “Penny was diagnosed with a ‘disability’ when she was born, and I still use that word to describe her condition because…
Dreaming for the Future
When Penny was younger, I resisted setting goals for her. The early years of her life were full of measurements and yardsticks and a sense of "falling short" of developmental…
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