The IEP Meeting Every Child With a Disability Deserves
Peter and I both cried at Penny’s annual meeting to discuss her IEP (Individualized Education Plan) goals. We cried because we were so overwhelmed with pride in her and gratitude…
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Abortion and People With Disabilities
Last week’s leak of a draft of a Supreme Court opinion that would overturn Roe v. Wade has people talking (yelling?) about abortion all over again. I wrote last week…
Hope Heals: Partnership of Hope and Healing
Last week, I had the honor of spending 24 hours with the board and staff and co-founders of Hope Heals. The time reminded me of many truths, including that the…
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Trapped by “Able”
"Human beings need to be rescued from seeing themselves as fundamentally ‘able.’” “It is the experience of one’s self as ‘able’ in comparison to others that is fundamentally problematic for…
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Can Disability and Blessing Go Hand in Hand?
Can disability and blessing go hand in hand? For a long time, I didn’t think so. And I still don’t understand how and when our genetic codes and bodies…
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TIME: How Disability Changed What Easter Means to My Family
I wrote an essay for TIME that came out today: How Disability Changed What Easter Means to My Family. As I write in this essay, when our daughter Penny was…
Down Syndrome Community…16 Years After Penny Was Born
When Penny was three weeks old, we got a call from a woman in town who had a teenager with Down syndrome. She was the head of the local Down…
Why You Should Watch CODA
Penny was the first person in our family to watch CODA, the Best-Picture winning film which doubles as a coming-of-age story and a reflection on life in a family as…
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“I Don’t Want Anyone to ‘Fix’ My Kid”
I listened to Heather Kirn Lanier and Bishop Curry in a beautiful conversation about disability and parenting and what it means to believe that we each are beloved as we…
Interview With Penny for World Down Syndrome Day
Penny, March 21 is World Down Syndrome Day. It’s a day to celebrate the lives of people like you, who were born with Down syndrome. Can you start by telling…
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