Talking About Pain: Helpful or Harmful?
Last week, I read a series of seven articles in the NYT that considered chronic pain from a variety of different angles. As someone who has been working on a…
Last week, I read a series of seven articles in the NYT that considered chronic pain from a variety of different angles. As someone who has been working on a…
My current stack of books: When the Body Says No Life of the Beloved God's Hotel No Cure for Being Human Becoming Friends of Time The Very Good Gospel…
A prominent pastor and theologian spoke at length earlier this week about why God might make some people unattractive. He lumped together “ugliness” with disfigurement and disability and then went…
I used to think that “awareness” was too small a word for what we need in order to change the perceptions and reality for people with Down syndrome like our…
Ending the day without anxiety. Receiving spiritual truth and practical wisdom from another mother of a child with a disability. And entering into a story about the extravagant tenderness of…
“The apple doesn’t fall far from the tree.” That’s what my sister wrote to me after I showed her an email from Penny. Penny, unprompted, had sent me a Google…
My name is Penny and I have an extra chromosome because I have Down syndrome. In my daily life I wake up independently, make breakfast, and go to school. My…
I remember this time, back when Penny was really little, when we were at a birthday party together and another mom was there with her child who also had a…
In honor of Down syndrome awareness month, I wanted to name a few things that I appreciate about our daughter Penny. One, that Penny moves through the world with less…
I dream of a world where everyone belongs. Last weekend, Penny was a bridesmaid in her old-babysitter-best-friend-for-life’s wedding, and I got a little glimpse of the joy of belonging. (Go…