What My Daughter Wants You to Know About Down Syndrome
We are approaching the end of Down syndrome awareness month. It always sneaks up on me. It’s both an arbitrary designation and also something that works to focus attention on…
Books About Down Syndrome for Readers of All Ages
Here are some book recommendations for all ages who might want to learn more about what it’s like to live with Down syndrome. My favorite memoirs for adults (in addition,…
The Time Tax: Do We Have to Prove We Deserve Help? • Annie Lowrey • S11 E1
REIMAGINING THE GOOD LIFE PODCAST What does government bureaucracy have to say about who matters in our society? Why does it take so long and feel so impossible to apply…
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How Bureaucracy Costs People Time and Dignity
For two decades now, we have navigated paperwork and bureaucratic systems with our daughter who has Down syndrome. When she turned 18, there were new systems to navigate—and new questions:…
What I’m Reading, Watching, and Listening To: October 2026
Books, essays, podcast episodes, and more that I think are worth your time, plus recent cultural news that I’m paying attention to in the month of October… {Get my favorites…
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Communication Skills for a Stronger Marriage While Parenting a Child with a Disability
“So, someday do you think you might take out the trash?” I remember my husband pointing out that I was a passive-aggressive communicator when I said things like this early…
College Transition Programs for Young Adults with Disabilities Should Be the Model, Not the Exception
I want to start today by saying thank you for your concern and support when I mentioned last week that Penny might have one year fewer than we expected in…
What Does It Mean to Live a Good Life? Introducing Season 11 of Reimagining the Good Life
REIMAGINING THE GOOD LIFE PODCAST Season 11 of Reimagining the Good Life begins October 28! This season, we’ll explore what it means to flourish through conversations about disability and belonging,…
Communication Skills Every Marriage Needs: Disability + Parenting • Katie Gohde, LPC, and Steve Gohde
TAKE THE NEXT STEP PODCAST E34—Do your conversations end in silence, defensiveness, or words you wish you could take back? Are unhealthy patterns undermining your marriage? How can you communicate…
2024
Does This Church Welcome Families With Disabilities? 4 Things to Look For
When our family was looking for a church, we saw a statement on a church’s website about a commitment to families with disabilities and seeing them as a gift who…
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