Is Parenting a Child With a Disability Harder?
I recently had a chance to talk with the new mother of a baby girl with Down syndrome. This mom’s emotions were raw and beautiful, that same combination of wonder…
I recently had a chance to talk with the new mother of a baby girl with Down syndrome. This mom’s emotions were raw and beautiful, that same combination of wonder…
TAKE THE NEXT STEP PODCAST E30 — What happens when the rhythms of caregiving make it difficult to establish any rhythms at all? That’s the question guiding author Jen Pollock Michel…
A few years ago, Peter and I both cried at our daughter's annual meeting to discuss her IEP (Individualized Education Plan) goals. We cried because we were so overwhelmed with…
I set out for a run on Saturday and decided to listen to a podcast with social scientist Adam Grant about how to say no. Saying no has been on my…
TAKE THE NEXT STEP PODCAST E29 — Do you have to fight everyone around the table to advocate well for your child? Many parents feel intimidated by disability advocacy. They…
Books, essays, podcast episodes, and more that I think are worth your time, plus recent cultural news that I’m paying attention to in the month of September… {Get my favorites…
I read a book last year by Greg McKeown. My favorite part came at the end, when McKeown offered a personal story of his daughter having epilepsy. His first responses was…
I just learned a new word: familect. It’s the idea that every family has its own language, its own dialect, the words and phrases that only make sense to a small…
TAKE THE NEXT STEP PODCAST E28 — Do you feel overwhelmed, isolated, or afraid of the future? Misty Coy Snyder knows those feelings well. After receiving a prenatal diagnosis of…
Somewhere along the way, my husband Peter and our daughter Penny, who has Down syndrome, developed an elaborate goodnight ritual involving a complicated handshake followed by cheering and naming sports…