Idolatry of Intellect
I didn't realize I’d gone into the hospital with a set of expectations, but I had. I very much had a set of expectations about who our child would be…
Bureaucracy and Disability
One of the things they tell you when you're a parent of a child with disabilities is that the bureaucracy is going to be awful. I thought it would be.…
Our Song for Penny’s 18th Birthday
Penny requested a song on the occasion of her 18th birthday. She also gave us instructions on the tune—we could refer to You Belong With Me or Our Song by…
Recap of Holiday Fun
Sometimes the holidays are one long stressful reminder of all the childhood wounds and irritations and conflicts you’ve ever tried to work through in therapy. And sometimes they are just…
Penny Turns 18
Our daughter Penny turns 18 today. She’s not at home with us, as it turns out. Rather, she is at a retreat center with a group of other teenagers for…
Season of Waiting and Impossibility
As many of you know, my husband took a new job as the Head of School at Taft, a boarding school in Watertown, CT. His position was announced a year ago. He…
NBC News Now | Teaching Kids About Disability and Friendship
Watch Segment 1 Watch Segment 2 I loved being able to talk yesterday about friendship and disability with my friend Niro Feliciano on NBC News Now. One thing I talked…
Using Our Spiritual Imaginations to Envision a Good and Possible Future
I get overwhelmed easily when I think about the future, especially as Penny is about to turn 18. We need to make decisions with her about guardianship and transition planning…
Screenshot of cover photo for the Christian Century essay
Christian Century: Worshiping at the church of Taylor Swift
Taylor Swift more or less plays on repeat when I’m driving around with our kids, so the recent arrival of The Eras Tour film, a new version of “Cruel Summer,” and 1989 (Taylor’s…
I’m a soccer mom.
I have spent the past few weeks bemoaning the hours I spend in the car, driving in circles around our local landscape. Our kids play on three different soccer teams.…
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