Sometimes the future comes at us like an assault. A tornado of unanswerable questions that suggest chaos is about to ensue. That’s what it felt like when Penny was diagnosed…
It’s a big deal to turn 18. For every teenager, that birthday marks a transition to adulthood. For kids with disabilities, it carries even more weight, especially as it connects…
I didn't realize I’d gone into the hospital with a set of expectations, but I had. I very much had a set of expectations about who our child would be…
One of the things they tell you when you're a parent of a child with disabilities is that the bureaucracy is going to be awful. I thought it would be.…
Penny requested a song on the occasion of her 18th birthday. She also gave us instructions on the tune—we could refer to You Belong With Me or Our Song by…
Sometimes the holidays are one long stressful reminder of all the childhood wounds and irritations and conflicts you’ve ever tried to work through in therapy. And sometimes they are just…
Our daughter Penny turns 18 today. She’s not at home with us, as it turns out. Rather, she is at a retreat center with a group of other teenagers for…
As many of you know, my husband took a new job as the Head of School at Taft, a boarding school in Watertown, CT. His position was announced a year ago. He…
Watch Segment 1 Watch Segment 2 I loved being able to talk yesterday about friendship and disability with my friend Niro Feliciano on NBC News Now. One thing I talked…
I get overwhelmed easily when I think about the future, especially as Penny is about to turn 18. We need to make decisions with her about guardianship and transition planning…
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