When Gratitude Interrupts
Last week, everything fell apart. Marilee got Covid, which came with a fever approaching 105. The car broke down and needed to be taken in for a two-day repair an…
Helping Kids With Disabilities Move Toward Independence
For the moms who feel like they aren’t doing enough to help their kids (with disabilities) move toward independence, here are a few things I’ve learned: “Not enough” is never…
2014 | Photo by Phil Dutton
I’m Working on a Video Teaching Series About Disability and Family
Sometimes the future comes at us like an assault. A tornado of unanswerable questions that suggest chaos is about to ensue. That’s what it felt like when Penny was diagnosed…
Turning 18 and Guardianship Decisions
It’s a big deal to turn 18. For every teenager, that birthday marks a transition to adulthood. For kids with disabilities, it carries even more weight, especially as it connects…
Idolatry of Intellect
I didn't realize I’d gone into the hospital with a set of expectations, but I had. I very much had a set of expectations about who our child would be…
Bureaucracy and Disability
One of the things they tell you when you're a parent of a child with disabilities is that the bureaucracy is going to be awful. I thought it would be.…
Our Song for Penny’s 18th Birthday
Penny requested a song on the occasion of her 18th birthday. She also gave us instructions on the tune—we could refer to You Belong With Me or Our Song by…
Recap of Holiday Fun
Sometimes the holidays are one long stressful reminder of all the childhood wounds and irritations and conflicts you’ve ever tried to work through in therapy. And sometimes they are just…
Penny Turns 18
Our daughter Penny turns 18 today. She’s not at home with us, as it turns out. Rather, she is at a retreat center with a group of other teenagers for…
Season of Waiting and Impossibility
As many of you know, my husband took a new job as the Head of School at Taft, a boarding school in Watertown, CT. His position was announced a year ago. He…
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