How to Talk With Siblings About Disability
How should I talk with my typically-developing kids about a brother or sister who has a disability? As the mother of an 18-year-old with Down syndrome with two younger siblings…
How should I talk with my typically-developing kids about a brother or sister who has a disability? As the mother of an 18-year-old with Down syndrome with two younger siblings…
If you are a parent who has recently received a hard diagnosis about your child, I have three thoughts that I want to offer. One, feel your feelings. When we…
Last week, everything fell apart. Marilee got Covid, which came with a fever approaching 105. The car broke down and needed to be taken in for a two-day repair an…
For the moms who feel like they aren’t doing enough to help their kids (with disabilities) move toward independence, here are a few things I’ve learned: “Not enough” is never…
Sometimes the future comes at us like an assault. A tornado of unanswerable questions that suggest chaos is about to ensue. That’s what it felt like when Penny was diagnosed…
It’s a big deal to turn 18. For every teenager, that birthday marks a transition to adulthood. For kids with disabilities, it carries even more weight, especially as it connects…
I didn't realize I’d gone into the hospital with a set of expectations, but I had. I very much had a set of expectations about who our child would be…
One of the things they tell you when you're a parent of a child with disabilities is that the bureaucracy is going to be awful. I thought it would be.…
Penny requested a song on the occasion of her 18th birthday. She also gave us instructions on the tune—we could refer to You Belong With Me or Our Song by…
Sometimes the holidays are one long stressful reminder of all the childhood wounds and irritations and conflicts you’ve ever tried to work through in therapy. And sometimes they are just…