Changing Prepositions (from “for” to “with”)
As a part of an ongoing desire to honor Penny’s capacities as an adult with Down syndrome, I’m learning to change my prepositions. I keep catching myself talking about things…
Mothers Can Pass Along Belovedness
What if, as mothers, we believed our own belovedness and passed that belief along to our daughters? I really appreciated Alexandra D’Amour’s essay for the New York Times about toxic…
COGNOSCENTI | Why our family still makes time for church on Sundays
"On Sunday mornings, our family does something unusual. We wake our three teenagers earlier than they want, shower and dress up a little bit, and drive seven minutes up the…
Penny’s Senior Night as a Cheerleader
If you had told me when she was born that our daughter with Down syndrome would be a Varsity cheerleader at our local high school, I don’t think I would…
2020 | Courtesy of Meghan Morse Photography
How to Talk With Siblings About Disability
How should I talk with my typically-developing kids about a brother or sister who has a disability? As the mother of an 18-year-old with Down syndrome with two younger siblings…
If You’re a Parent Who Has Received a Hard Diagnosis About Your Child
If you are a parent who has recently received a hard diagnosis about your child, I have three thoughts that I want to offer. One, feel your feelings. When we…
When Gratitude Interrupts
Last week, everything fell apart. Marilee got Covid, which came with a fever approaching 105. The car broke down and needed to be taken in for a two-day repair an…
Helping Kids With Disabilities Move Toward Independence
For the moms who feel like they aren’t doing enough to help their kids (with disabilities) move toward independence, here are a few things I’ve learned: “Not enough” is never…
2014 | Photo by Phil Dutton
I’m Working on a Video Teaching Series About Disability and Family
Sometimes the future comes at us like an assault. A tornado of unanswerable questions that suggest chaos is about to ensue. That’s what it felt like when Penny was diagnosed…
Turning 18 and Guardianship Decisions
It’s a big deal to turn 18. For every teenager, that birthday marks a transition to adulthood. For kids with disabilities, it carries even more weight, especially as it connects…
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