Changing Prepositions (from “for” to “with”)
As a part of an ongoing desire to honor Penny’s capacities as an adult with Down syndrome, I’m learning to change my prepositions. I keep catching myself talking about things…
Down Syndrome Through the Ages
How did ancient cultures treat people with Down syndrome? Researchers just discovered the remains of a few babies with Down syndrome from thousands of years ago, and they determined that…
Penny’s Senior Night as a Cheerleader
If you had told me when she was born that our daughter with Down syndrome would be a Varsity cheerleader at our local high school, I don’t think I would…
2020 | Courtesy of Meghan Morse Photography
How to Talk With Siblings About Disability
How should I talk with my typically-developing kids about a brother or sister who has a disability? As the mother of an 18-year-old with Down syndrome with two younger siblings…
Applying to the Emerging Pathways Program
Penny just submitted her application for an “emerging pathways” program on a local University campus. She spent hours filling out the forms and working on short essays to describe her…
If You’re a Parent Who Has Received a Hard Diagnosis About Your Child
If you are a parent who has recently received a hard diagnosis about your child, I have three thoughts that I want to offer. One, feel your feelings. When we…
The Disability Community Needs Grandparents Like These
I spoke with the Massachusetts Down Syndrome Congress Grandparents support group this week by Zoom, and what struck me most was that they all just want a good future for…
Disability and Suffering Are Not the Same
Disability and suffering are not the same. I was so disappointed to read John McWhorter's misunderstanding of disability in the NYT. He wrote: "To say that someone “has” a disability…
Helping Kids With Disabilities Move Toward Independence
For the moms who feel like they aren’t doing enough to help their kids (with disabilities) move toward independence, here are a few things I’ve learned: “Not enough” is never…
Disability and Self-Care Skills: Nail Clipping
“I have never known a person with Down syndrome who could cut their own fingernails.” I heard these words, and my stomach fell a little bit. I had just asked…
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