RFK Jr., Autism, and the Story We Need Instead
Apple YouTube Spotify More! Is disability a tragedy? Is it a gift? What place is there for grief and for joy in this story of disability so many of us…
The Next Step Matters
I used to hate setting goals for Penny. It felt like I was measuring her worth based on how quickly she achieved something I arbitrarily decided for her. I wanted…
What do I think about ads, TV shows, and movies that include people with disabilities?
At a recent event, one woman asked me what I think of advertisements that include people with Down syndrome and other visible disabilities. Another man asked me what I think…
In the Room Where Decisions Are Made
I will never forget the day that our daughter Penny said to me, “It doesn’t only matter what you think.” We were shopping for a dress, and I was being…
COGNOSCENTI | The Trump administration’s rhetoric about disability diminishes us all
Grateful to write today for Cognoscenti/WBUR, Boston’s NPR station (read the full essay here): "The language we use and the stories we tell shape our behavior, writes Amy Julia Becker.…
Spread the Word to End the Word
To my knowledge, no one has ever called our daughter Penny by the most common slur used to demean people with intellectual disabilities, the r-word. I’m glad she hasn’t been…
Photo by Bryan Johnson
Connect to Community | It Makes All the Difference!
Peter and I have often received praise for our parenting when people meet Penny, our daughter who has Down syndrome. That’s all very nice, but it’s clear to me that…
Belonging Begins With an Invitation
One of the most heartbreaking aspects of being a mother is watching our kids get excluded. I’ve seen it at times for all three of them, but exclusion happens most…
Goal Setting: From A to B to Z
I used to hate setting goals for Penny. It felt like I was measuring her worth based on how quickly she achieved them. Now I see goal setting—for her and…
Why Rachel Handlin’s Art Exhibit Prompted Me to Change My Prepositions
Happy New Year! We’ve taken down our tree and put away the gnomes and nutcrackers. The kids are back at school. We reviewed the highlights of the past year as…
