Finding Other Ways to Communicate…
“I call shotgun.” I remember these days, back when I squabbled with my sisters over who got to sit up front. Now we are reenacting the same conversations within my…
When You Post About Barbie on Social Media
A few weeks ago, I wrote about “Barbie” (the movie) and disability. As Amber, my social media coordinator says, “the algorithm decided to show your post to a lot of…
Tell Your Story
On the first morning of Hope Heals camp, the woman beside me said, "I can't really believe I'm walking next to you right now. I follow you on Instagram, and…
Photo of the cover graphic of the Atlantic
How “The Ones We Sent Away” Connects to Our Present Moment
Because we have a daughter with Down syndrome, I hear lots of stories about family members with Down syndrome and other intellectual disabilities. Sometimes I hear the stories of siblings…
Penny Got a Job
Penny had her first day of work last week. That’s right. Work. Employment. Four hours, three days a week, at a local cafe and bakery. She made brownies and spicy…
Why Go to Hope Heals Camp | Penny in Her Own Words
Years ago, I wrote a piece for the Huffington Post called “Missing Out on Beautiful.” It was prompted by my realization that it was really hard to capture Penny’s true…
Hollywood, via Barbie, Still Doesn’t Know What To Do With Disability
{Keep scrolling for an update to this post.} Our whole family went to see the new Barbie movie on Friday. We loved it. I laughed so hard Penny shushed me.…
Hope Moments: Living Out the Way of Jesus
I want to tell you about every moment from Hope Heals camp. But even with all my words and stories, and even with Ashley Monogue’s gorgeous photography (montage below), and…
Image courtesy of Canva Pro
Down Syndrome, Teenagers, and Holy Limits
Having a teenager with Down syndrome puts different limits on our family than having a typical teen. She has needs that other teenagers don’t have. For example, Penny isn’t planning…
Photo by Ashley Monogue
Hope Heals: Everyone Lifted Up
In typical American life, some people win and others lose. Some people get the award and others get no recognition. Some people are considered better than others. It’s not that…
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