TIME: Doctors Don’t Know How to Talk About Down Syndrome
Read the Essay: Doctors Don't Know How to Talk About Down Syndrome Any parent who has received a prenatal or postnatal diagnosis of Down syndrome (or any other genetic condition)…
Photo by by Ashley Monogue
“They aren’t special needs. They are human needs.”
“They aren’t special needs. They are human needs.” My friend Jay Wolf gave this beautifully concise explanation of why the term “special needs” is problematic. To say that his wife…
The Particular Faces of People With Down Syndrome
Penny and her friend Rachel call each other twins sometimes. It came about because they realized that they could open each other’s phones without a password. Apple’s facial recognition software…
What Penny and I Thought About the Champions Movie
I’m a little late to this game (no pun intended), but we watched Champions as a family recently, and we all want to recommend it. (Spoiler alert!) Woody Harrelson plays…
12 Year Anniversary of A Good and Perfect Gift
Twelve years ago today, A Good and Perfect Gift came out into the world. I still hear from readers regularly, and I am so so honored that our story has…
Finding Other Ways to Communicate…
“I call shotgun.” I remember these days, back when I squabbled with my sisters over who got to sit up front. Now we are reenacting the same conversations within my…
When You Post About Barbie on Social Media
A few weeks ago, I wrote about “Barbie” (the movie) and disability. As Amber, my social media coordinator says, “the algorithm decided to show your post to a lot of…
Tell Your Story
On the first morning of Hope Heals camp, the woman beside me said, "I can't really believe I'm walking next to you right now. I follow you on Instagram, and…
Photo of the cover graphic of the Atlantic
How “The Ones We Sent Away” Connects to Our Present Moment
Because we have a daughter with Down syndrome, I hear lots of stories about family members with Down syndrome and other intellectual disabilities. Sometimes I hear the stories of siblings…
Penny Got a Job
Penny had her first day of work last week. That’s right. Work. Employment. Four hours, three days a week, at a local cafe and bakery. She made brownies and spicy…
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