Down Syndrome Is Not Like a Car Crash
I hear the comparison all the time. When people want to explain that the unexpected can happen to any of us, and to any of our children, at any time,…
I hear the comparison all the time. When people want to explain that the unexpected can happen to any of us, and to any of our children, at any time,…
How do we prepare now to die well? Can we reimagine care of the dying in all of its messiness as a gift? Dr. Lydia Dugdale, a medical ethicist, internal medicine…
She wanted it to be a surprise. So when we showed up to watch Penny on stage for her annual Spring Dance Fest, we were expecting the usual. Penny would…
Are messy diapers, loads of laundry, and sleep deprivation part of your life right now? Nine years ago, Small Talk was published, and I just got to record it as…
When I was lying in the hospital bed a few hours after Penny was born and diagnosed with Down syndrome, a nurse told me, “I had a special child too.”…
We ended up in seats that money can’t buy at the Taylor Swift concert last Saturday night. It started in March when we received two tickets at reasonable prices through…
“Do you want to eat lunch with us?” Those might be the most powerful words in the vocabulary of high school. I had a chance to meet with a group…
I used to describe Penny as a girl with light brown hair and big green eyes, who loved reading and dancing. And then I would write something along the lines…
I’m taking a class right now where I’m learning all sorts of things about transitioning from high school to college or the workforce and beyond. Recently, our instructor mentioned that…
I’ve had to learn not to sacrifice our daughter on the altar of my ideology. When Penny was a toddler, I read an article about a teenager with Down syndrome…