Why Go to Hope Heals Camp | Penny in Her Own Words
Years ago, I wrote a piece for the Huffington Post called “Missing Out on Beautiful.” It was prompted by my realization that it was really hard to capture Penny’s true…
Hollywood, via Barbie, Still Doesn’t Know What To Do With Disability
{Keep scrolling for an update to this post.} Our whole family went to see the new Barbie movie on Friday. We loved it. I laughed so hard Penny shushed me.…
Hope Moments: Living Out the Way of Jesus
I want to tell you about every moment from Hope Heals camp. But even with all my words and stories, and even with Ashley Monogue’s gorgeous photography (montage below), and…
Image courtesy of Canva Pro
Down Syndrome, Teenagers, and Holy Limits
Having a teenager with Down syndrome puts different limits on our family than having a typical teen. She has needs that other teenagers don’t have. For example, Penny isn’t planning…
Photo by Ashley Monogue
Hope Heals: Everyone Lifted Up
In typical American life, some people win and others lose. Some people get the award and others get no recognition. Some people are considered better than others. It’s not that…
All Kids Can Learn
All kids can learn, but when Penny was born, I was told only that she would have developmental delays and an intellectual disability. What if I had been told instead…
Camp PALS and Belonging
Penny sent me a text on her first night of Camp PALS: “With my favorite girl at my favorite place.” The next day, the text read, “Best year ever.” Penny…
What Breaking a Record Has To Do With Responsive Parenting
I love stories that remind me of the power of building on strengths rather than focusing on deficits. In disability circles, it’s really easy to pay attention to what our…
Down Syndrome Is Not Like a Car Crash
I hear the comparison all the time. When people want to explain that the unexpected can happen to any of us, and to any of our children, at any time,…
S6 E21 | A Good Life, A Good Death with Dr. Lydia Dugdale
How do we prepare now to die well? Can we reimagine care of the dying in all of its messiness as a gift? Dr. Lydia Dugdale, a medical ethicist, internal medicine…
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