Life in the Woods
There was a day when I realized that no doctor would ever emerge to say about Penny having Down syndrome, “It was touch and go for a while there, but…
There was a day when I realized that no doctor would ever emerge to say about Penny having Down syndrome, “It was touch and go for a while there, but…
Here are some of my recent favorite books, a podcast, and an essay, as well as a beautiful song: 1. Novel: Machines Like Me by Ian McEwan What would it…
As many of you know, my husband took a new job as the Head of School at Taft, a boarding school in Watertown, CT. His position was announced a year ago. He…
Penny and I had a great visit to the Mass General Down Syndrome Clinic on Friday. Even though I so appreciated all the specialists and their respect and care for…
10 books I loved in 2023: NON-FICTION Emotional Lives of Teenagers by Lisa D’Amour I’ve referred to this book again and again to remember that teens who can express &…
Before I headed into Rockefeller Center with my friend Niro to talk with NBC News about disability and friendship, we had to prepare. The brainstorming was the easy part. I…
Watch Segment 1 Watch Segment 2 I loved being able to talk yesterday about friendship and disability with my friend Niro Feliciano on NBC News Now. One thing I talked…
Once a year, Penny and I travel to see a specialist and his team at the Down syndrome clinic at Massachusetts General Hospital. Every year, I wonder whether it will…
Adults with intellectual disabilities can have robust spiritual lives. Are we learning from them? Every Sunday afternoon, my daughter and I join a Zoom call with her friend and her…
I get overwhelmed easily when I think about the future, especially as Penny is about to turn 18. We need to make decisions with her about guardianship and transition planning…