Kids, Disability, and Relationships
Here’s what I wish parents of typically developing kids knew about disability and relationships: Disability isn’t a completely different experience. It’s often a magnified version of the human experience we all…
When the Eye Twitch Comes Back—And What That Has to Do With Hope
As those of you who have read White Picket Fences may remember, I developed an eye twitch when I was working on that book. So maybe I shouldn’t be surprised that said…
Photo by Cloe Poisson 2024
When the parenting to-do list feels like a flood and I catastrophize
I get overwhelmed pretty regularly by all the things I could be doing to support our kids. Marilee is heading to a new school in the fall, and the forms…
True Friendship Isn’t Built on Pity
Years ago, one of our kids came home from preschool and said, “She cries a lot and doesn’t share her toys.” Our child were talking about a classmate who had…
Enjoying June
June has been full of gifts! We are enjoying 8th grade graduation, family parties, trips to the shore, our anniversary, Camp PALS, and more! 8th Grade Graduation Marilee graduated from…
“You are a human. You belong here.”
I’ve been thinking a lot about belonging—what it feels like, where we find it, and how we create spaces that nurture it, spaces that say, "You are a human. You…
June 2025 | Things Worth Your Time
Books, essays, podcasts episodes, and more that I think are worth your time, plus recent cultural news that I’m paying attention to… FILMS/MOVIES/DOCUMENTARIES TEDxAtlanta: Cash, Casseroles, and Grief: Rethinking How…
Supreme Court Sides With Student With Disabilities
I was encouraged to see that the Supreme Court ruled unanimously to protect the rights of kids with disabilities and their parents. In this case, a family whose daughter had epileptic seizures…
The Lucky Few: Finding Delight and Belonging in Disability
When Heather Avis says she’s one of “the lucky few,” she means it. In this episode, we talk about growing up with our children with Down syndrome, what it means…
Cinderella Syndrome
Cinderella syndrome. I coined this phrase in conversation with my counselor a few years ago. I suffer from Cinderella syndrome every time I feel like I can’t do what I…
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