We Are Beloved: The Mindset Shift That Transformed Our Family
I remember being at a retreat where there were a lot of children present who were around the same age as Penny, our daughter who has Down syndrome. I spent…
Gus Walz and the Significance of Belonging
Tim Walz took center stage at the Democratic National Convention and so did his son Gus, who has a nonverbal learning disorder as well as ADHD. Through their interaction, we…
5 Things I Love Right Now {August 2024}
Here in Connecticut, it is still summer. I know there are parts of the country where kids have been back in school for weeks, but our kids are sleeping in…
I Want to Celebrate Aging
I want to celebrate aging. I’m 47 years old, and I want to embrace the signs of age—freedom to be in this face and this body. I want to get…
My Daughter Does Not Exist to Teach Me a Lesson
Many people, when Penny was first born, talked to me about why it would be good for me to have a child with Down syndrome. They said: Penny would be…
Universal Design Matters to All of Us
The cool thing about universal design is that you don’t even notice it. I’ve been attending Hope Heals Camp at Camp McDowell in Nauvoo, Alabama for four summers now.1 I’ve heard people say that it…
Supporting Penny’s Goals
I used to be afraid to set goals for our daughter Penny, who has Down syndrome. It felt like if we didn't meet those goals, we would be passing judgment…
Happy 16th Birthday, William
William turned 16 last week. We ordered Indian food and ate ice cream cake and sang a song in his honor. The chorus (set to Taylor Swift’s Getaway Car) might…
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How Politicians Talk About Disability Matters
As we head into another election cycle, I’m paying attention to the language politicians use to talk about people with disabilities. This is not a partisan issue. I’ve heard politicians…
The Wonder of Kindness and Joy on Planet Earth
Last year, after we returned from a week at Hope Heals Camp, I wrote that camp “is not a place where we lay out a message of salvation, but rather…
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