When You Post About Barbie on Social Media
A few weeks ago, I wrote about “Barbie” (the movie) and disability. As Amber, my social media coordinator says, “the algorithm decided to show your post to a lot of…
Tell Your Story
On the first morning of Hope Heals camp, the woman beside me said, "I can't really believe I'm walking next to you right now. I follow you on Instagram, and…
Photo of the cover graphic of the Atlantic
How “The Ones We Sent Away” Connects to Our Present Moment
Because we have a daughter with Down syndrome, I hear lots of stories about family members with Down syndrome and other intellectual disabilities. Sometimes I hear the stories of siblings…
Summer Loving
Peter and I had just under 48 hours away and alone together to ride bikes and sit on the beach and eat halibut and read and talk and walk along…
Screenshot of the cover graphic for the "We've Lost the Plot" essay in the Atlantic
Forgetting our Humanity
“‘The propagandist’s purpose,’ Aldous Huxley observed, ‘is to make one set of people forget that certain other sets of people are human.’” This quotation came from an essay in the…
Ableism at the County Fair
Last week, I received an email from Amber, who has three kids, including Cal*, her son with a rare genetic difference. Amber is also my unbelievably talented and faithful social…
Penny Got a Job
Penny had her first day of work last week. That’s right. Work. Employment. Four hours, three days a week, at a local cafe and bakery. She made brownies and spicy…
What’s Wrong With America Right Now?
What’s wrong with America right now? Everywhere I go, I encounter this question. Pop culture’s biggest current hit, Barbie, has one answer: patriarchy. Tim Urban’s recent book, What’s Our Problem?,…
Why Go to Hope Heals Camp | Penny in Her Own Words
Years ago, I wrote a piece for the Huffington Post called “Missing Out on Beautiful.” It was prompted by my realization that it was really hard to capture Penny’s true…
7 Things That Happened During Our Week Without Screens
For seven days, our family put down our devices (here's why we did this). William found a friend to keep up his Snap streak. Marilee and Penny turned off their…
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