How should I talk with my typically-developing kids about a brother or sister who has a disability? As the mother of an 18-year-old with Down syndrome with two younger siblings…
Penny just submitted her application for an “emerging pathways” program on a local University campus. She spent hours filling out the forms and working on short essays to describe her…
Reimagining the Good Life. Disability. Faith. Culture. After months and months of conversation, that’s where we’ve landed as a concise way to invite people to explore the work I do.…
Today is the first day of Lent, the church season of preparation for Easter. It’s a good time to reconsider this faith. For me this year, that means I’m reading…
Apple YouTube Spotify More! This podcast has a new name: Reimagining the Good Life. If you’re asking, “Why a name change?” and “Why now?”—I have answers! Author and teacher Patricia…
If you are a parent who has recently received a hard diagnosis about your child, I have three thoughts that I want to offer. One, feel your feelings. When we…
I spoke with the Massachusetts Down Syndrome Congress Grandparents support group this week by Zoom, and what struck me most was that they all just want a good future for…
Last week, everything fell apart. Marilee got Covid, which came with a fever approaching 105. The car broke down and needed to be taken in for a two-day repair an…
Apple YouTube Spotify More! Is faith something that should always stay the same? Or is it something that evolves by necessity? Sarah Bessey, author of Field Notes for the Wilderness,…
Can you imagine being denied the chance to even apply for a job? A job that you're qualified for and that you've studied for and that you're ready for, but…
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