If You’re a Parent Who Has Received a Hard Diagnosis About Your Child
If you are a parent who has recently received a hard diagnosis about your child, I have three thoughts that I want to offer. One, feel your feelings. When we…
The Disability Community Needs Grandparents Like These
I spoke with the Massachusetts Down Syndrome Congress Grandparents support group this week by Zoom, and what struck me most was that they all just want a good future for…
When Gratitude Interrupts
Last week, everything fell apart. Marilee got Covid, which came with a fever approaching 105. The car broke down and needed to be taken in for a two-day repair an…
S7 E8 | The Gifts of an Evolving Faith with Sarah Bessey
Apple YouTube Spotify More! Is faith something that should always stay the same? Or is it something that evolves by necessity? Sarah Bessey, author of Field Notes for the Wilderness,…
Being Heumann
Can you imagine being denied the chance to even apply for a job? A job that you're qualified for and that you've studied for and that you're ready for, but…
Disability and Suffering Are Not the Same
Disability and suffering are not the same. I was so disappointed to read John McWhorter's misunderstanding of disability in the NYT. He wrote: "To say that someone “has” a disability…
Helping Kids With Disabilities Move Toward Independence
For the moms who feel like they aren’t doing enough to help their kids (with disabilities) move toward independence, here are a few things I’ve learned: “Not enough” is never…
January Favorites 2024
Get my favorites delivered to your inbox each month! Subscribe here! Right now, my desk (and floor and bedside table) are overflowing with books. I order way too many books online.…
Black History Month
As we enter Black History Month tomorrow, I want to highlight some of the Black voices who have helped me expand my understanding of Black history and culture. JEMAR TISBY…
Disability and Self-Care Skills: Nail Clipping
“I have never known a person with Down syndrome who could cut their own fingernails.” I heard these words, and my stomach fell a little bit. I had just asked…
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