COGNOSCENTI | What prenatal testing can’t tell you
Having a child with Down syndrome has been an irrational, unprovable good. In a world of increasing mechanization, measurement and merit, we need people like our daughter among us to…
Honoring Women’s Hard Choices
When it comes to prenatal testing and disability, there are two extremes. One is the thought that a prenatal diagnosis of a disability like Down syndrome (trisomy 21) or other…
If You’re a Parent Who Has Received a Hard Diagnosis About Your Child
If you are a parent who has recently received a hard diagnosis about your child, I have three thoughts that I want to offer. One, feel your feelings. When we…
S7 E4 | Breaking Down Bias: Prenatal Diagnoses and Comprehensive Care with Stephanie Meredith
Apple YouTube Spotify More! What happens when women receive a prenatal diagnosis of Down syndrome? How does that diagnosis affect those women and their families? How does it affect our…
TIME: Doctors Don’t Know How to Talk About Down Syndrome
Read the Essay: Doctors Don't Know How to Talk About Down Syndrome Any parent who has received a prenatal or postnatal diagnosis of Down syndrome (or any other genetic condition)…
A Few Things I Learned From Writing About Prenatal Testing
24 hours after my essay for the New York Times came out online, I learned it was also in the print edition! So that was exciting. But I also learned…
Screenshot of image used in the New York Times article
New York Times: I’m Thankful Every Day for the Decision I Made After My Prenatal Tests
Gulp. I got to write an opinion piece for the New York Times about prenatal tests and Down syndrome. There are all sorts of problems with the prenatal testing industry…
