Penny in Her Own Words: Graduation and the Future
Penny is a high school graduate! Here are her reflections on graduation day and the future: I can’t really believe you have finished your final year of high school! How…
Humanity, Belonging, and “An Ordinary Future”
Penny’s school reached out months ago to make sure they could special order both a robe and a cap that would fit her well—an example of belonging. How do we…
S7 E18 | Exploring the Good Life with Meghan Sullivan, Ph.D.
Apple YouTube Spotify More! What does it mean to live a good life? How do we find meaning and happiness in our everyday lives? In this episode, Amy Julia Becker…
Penny’s Final Dance Recital
I never ever imagined Penny would dance for twelve years. I knew dance was a good activity for her as a little kid with Down syndrome. It rewarded repetition. It…
Why Belonging Matters
I’ve been thinking about the difference between inclusion and belonging. These thoughts have mostly been prompted by all the end-of-high school events for our daughter Penny, who has Down syndrome.…
Penny in Her Own Words: Senior Project Presentation
Intellectual disability does not need to prevent young adults from learning. With support, encouragement, and room to make mistakes and grow from them, students like our daughter Penny, who has…
Penny in Her Own Words: Senior Prom
We’ve been talking about senior prom all year long, and I wasn’t sure whether the event itself would be a letdown after so much anticipation. But here’s what Penny, our…
screenshot of Washington Post photo
Biased Response to Patients with Down Syndrome
I just learned about a recently named condition: Down syndrome regression disorder (DSRD) from an article (read for free here) in the Washington Post. But I also learned that the…
What Is Normal?
What is "normal?" I don’t use the word normal very much anymore. It’s just one of the many ways my language has changed in the years since Penny was diagnosed…
Image Courtesy of Canva Pro
How Language Shapes Our Imagination
I’m two weeks into my new workshop, Reimagining Family Life with Disability. We have nearly 40 parents of children with disabilities who are Zooming in from across the United States—Vermont, Georgia,…
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