Penny’s Final Dance Recital
I never ever imagined Penny would dance for twelve years. I knew dance was a good activity for her as a little kid with Down syndrome. It rewarded repetition. It…
Why Belonging Matters
I’ve been thinking about the difference between inclusion and belonging. These thoughts have mostly been prompted by all the end-of-high school events for our daughter Penny, who has Down syndrome.…
Penny in Her Own Words: Senior Project Presentation
Intellectual disability does not need to prevent young adults from learning. With support, encouragement, and room to make mistakes and grow from them, students like our daughter Penny, who has…
Penny in Her Own Words: Senior Prom
We’ve been talking about senior prom all year long, and I wasn’t sure whether the event itself would be a letdown after so much anticipation. But here’s what Penny, our…
screenshot of Washington Post photo
Biased Response to Patients with Down Syndrome
I just learned about a recently named condition: Down syndrome regression disorder (DSRD) from an article (read for free here) in the Washington Post. But I also learned that the…
What Is Normal?
What is "normal?" I don’t use the word normal very much anymore. It’s just one of the many ways my language has changed in the years since Penny was diagnosed…
Image Courtesy of Canva Pro
How Language Shapes Our Imagination
I’m two weeks into my new workshop, Reimagining Family Life with Disability. We have nearly 40 parents of children with disabilities who are Zooming in from across the United States—Vermont, Georgia,…
Penny in Her Own Words: Senior Trip
Life for our 18-year-old with Down syndrome isn’t perfect, but it is good. Penny just spent three days with her class on their senior spring trip. I asked her to…
Our Love for Each Other Matters Most
What matters most is our love for each other. Yesterday I had a chance to meet with two different groups of people from around the nation and around the globe—California,…
The Highs are Higher
“The highs are higher and the lows are lower.” Peter and I used to say that a lot about having a child with Down syndrome. In recent years, the emotions…
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