What Is Normal?
What is "normal?" I don’t use the word normal very much anymore. It’s just one of the many ways my language has changed in the years since Penny was diagnosed…
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How Language Shapes Our Imagination
I’m two weeks into my new workshop, Reimagining Family Life with Disability. We have nearly 40 parents of children with disabilities who are Zooming in from across the United States—Vermont, Georgia,…
Penny in Her Own Words: Senior Trip
Life for our 18-year-old with Down syndrome isn’t perfect, but it is good. Penny just spent three days with her class on their senior spring trip. I asked her to…
Our Love for Each Other Matters Most
What matters most is our love for each other. Yesterday I had a chance to meet with two different groups of people from around the nation and around the globe—California,…
The Highs are Higher
“The highs are higher and the lows are lower.” Peter and I used to say that a lot about having a child with Down syndrome. In recent years, the emotions…
Prioritize Relationships
I gave our daughter Penny two choices for her senior year spring break—the Bahamas (where she has always wanted to go) or Atlanta. She chose Atlanta because going to Atlanta…
S7 E14 | How to Honor Limits in a World That Doesn’t with Micha Boyett
Apple YouTube Spotify More! What's the difference between limitations and brokenness? What does it mean to be blessed? How can a dual diagnosis of Down syndrome and autism be a…
Provide Opportunities, Assume Possibility
Penny fell behind in ballet earlier this year. During cheer season, she missed a lot of classes and rehearsals. She also (unbeknownst to me) started sitting out of the rehearsals…
Let’s Drop “Low/High Functioning”
I was totally taken aback the first time someone asked me if our daughter Penny was low functioning. I didn't want to talk about any human in terms of how…
Penny Goes to College
Most people say that kids with intellectual disabilities fall off a cliff when they turn 18 and complete their time in high school. Even though most of them are still…
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