Idolatry of Intellect
I didn't realize I’d gone into the hospital with a set of expectations, but I had. I very much had a set of expectations about who our child would be…
Bureaucracy and Disability
One of the things they tell you when you're a parent of a child with disabilities is that the bureaucracy is going to be awful. I thought it would be.…
Penny Turns 18
Our daughter Penny turns 18 today. She’s not at home with us, as it turns out. Rather, she is at a retreat center with a group of other teenagers for…
Photo December 2008
When Love Shows Up
On Christmas we celebrate because love has shown up in our world. Not in some vague, abstract way. But love, in the flesh, in the person of Jesus. And when…
Life in the Woods
There was a day when I realized that no doctor would ever emerge to say about Penny having Down syndrome, “It was touch and go for a while there, but…
Season of Waiting and Impossibility
As many of you know, my husband took a new job as the Head of School at Taft, a boarding school in Watertown, CT. His position was announced a year ago. He…
Our Visit to the Mass General Down Syndrome Clinic
Penny and I had a great visit to the Mass General Down Syndrome Clinic on Friday. Even though I so appreciated all the specialists and their respect and care for…
My Stressful, Fun Day at NBC
Before I headed into Rockefeller Center with my friend Niro to talk with NBC News about disability and friendship, we had to prepare. The brainstorming was the easy part. I…
NBC News Now | Teaching Kids About Disability and Friendship
Watch Segment 1 Watch Segment 2 I loved being able to talk yesterday about friendship and disability with my friend Niro Feliciano on NBC News Now. One thing I talked…
Why Our Down Syndrome Clinic Appointment Is Worth It
Once a year, Penny and I travel to see a specialist and his team at the Down syndrome clinic at Massachusetts General Hospital. Every year, I wonder whether it will…
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