What I Wish I’d Known When Our Child Was Diagnosed with Down Syndrome
GET THE FREE DOWNLOAD On December 30, 2005, our firstborn daughter came into the world. It was an easy delivery—a little early, but not premature, no signs of distress or…
Homecoming and Belonging
As a mother of a child with a disability, school events can be rough. I’m talking about everything from dances to sports to eating lunch in the cafeteria. I don’t…
Using the Spiritual Imagination as a Vehicle for Hope
A few months after Penny was first born, I realized that I lacked an imagination for a good future for our family. What little understanding I had of life with…
TIME: Doctors Don’t Know How to Talk About Down Syndrome
Read the Essay: Doctors Don't Know How to Talk About Down Syndrome Any parent who has received a prenatal or postnatal diagnosis of Down syndrome (or any other genetic condition)…
Photo by by Ashley Monogue
“They aren’t special needs. They are human needs.”
“They aren’t special needs. They are human needs.” My friend Jay Wolf gave this beautifully concise explanation of why the term “special needs” is problematic. To say that his wife…
The Particular Faces of People With Down Syndrome
Penny and her friend Rachel call each other twins sometimes. It came about because they realized that they could open each other’s phones without a password. Apple’s facial recognition software…
Disability Is Central to James McBride’s Latest Novel. Critics Are Missing That Point.
Has anyone else read James McBride’s latest novel, The Heaven and Earth Grocery Store? I really liked it. I’ve read reviews, but I think the critics are missing a central…
What Penny and I Thought About the Champions Movie
I’m a little late to this game (no pun intended), but we watched Champions as a family recently, and we all want to recommend it. (Spoiler alert!) Woody Harrelson plays…
12 Year Anniversary of A Good and Perfect Gift
Twelve years ago today, A Good and Perfect Gift came out into the world. I still hear from readers regularly, and I am so so honored that our story has…
Finding Other Ways to Communicate…
“I call shotgun.” I remember these days, back when I squabbled with my sisters over who got to sit up front. Now we are reenacting the same conversations within my…
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